Abstract jenn on the same day sent me a video clip that I would like to share with you of an autistic young man reduced to giggles in his big moment in the middle of the National anthem.
Tuesday, 27 November 2007
Monday, 26 November 2007
2. A prairie dog is not a dog - it's a rodent.
3. India ink is not from India - it's from China and Egypt.
4. A horned toad is not a toad - it's a lizard.
5. A lead pencil contains no lead - it contains graphite.
6. A silkworm is not a worm - it's a caterpillar.
7. A peanut is not a nut - it's a legume.
8. A panda bear is not a bear - it's a raccoon relative.
9. A guinea pig is not from Guinea and is not a pig - it's from South America and it's a rodent.
10. Shortbread is not a bread - it's a thick biscuit.
11. A shooting star is not a star - it's a meteor.
12. A funny bone is not a bone - it's the spot where the ulnar nerve touches the humerus.
13. Chop suey is not a native Chinese dish - it was invented by Chinese immigrants in California.
14. A bald eagle is not bald - it's got flat white feathers on its head and neck when mature, dark feathers when young.
15. A banana tree is not a tree - it's a herb.
16. A cucumber is not a vegetable - it's a fruit.
17. A jackrabbit is not a rabbit - it's a hare.
18. A piece of catgut is not from a cat - it's usually made from sheep intestines.
19. A Mexican jumping bean is not a bean - it's a seed with a larva inside.
20. A Turkish bath is not Turkish - it's Roman.
21. A koala bear is not a bear - it's a marsupial.
22. A sweetbread is not bread - it's from a calf's or lamb's pancreas or thymus.
23. Bombay duck is not a duck - it's a dried fish
24. A prairie oyster is not an oyster - it's a calf's testicle
25. An autistic person is not just autistic, they are also a person.
Sunday, 25 November 2007
Saturday, 24 November 2007
Friday, 23 November 2007
C used to smear up to 5 times a day, this has only got less in the last few years. Its just something you deal with. One of my favourite professionals who used to come and see me was an incontinence advisor, as she and I could have great poo conversations! (does that make me sad? Or is it just because no one else wants to talk about it after their child is potty trained!) In Japan they worship poo! There are many reasons why some people like to smear (its not just an autistic thing) and am still to this day not sure why C does it. Its just part of him. I should put it to good use really being the green mum that i am!
Poo on the walls, poo in his hair.
Thursday, 22 November 2007
And the winner of this most prestigious award goes to................. Chopski with "Captain Kirk's nicked my dildo so its your lucky day!"
So if you feel at the end of your tether, just remember it may not always be like that. 'Some' things do change.
Wednesday, 21 November 2007
To win this most sort after accolade all you have to do is add a caption to each picture or both together! (Couldn't decide which one to post so i posted both!)
If that is all too much i would also like to mention a couple of blogs that i think are worthy of more readers;
Tuesday, 20 November 2007
Monday, 19 November 2007
Some disabled toilet doors now work automatically so you cant quickly shut them behind you, as soon as C sees a loo as he works on visual prompts his trousers are down by his knees and the door is still wide open! So I try and avoid these loos.
The other kind of toilet I try and avoid are the ones on trains. This is only since a rather embarrassing incident. C had had an accident, I wont go into too much detail but basically I hadn’t locked the loo door properly and a rather red faced woman was standing there mouth open whilst I was kneeling over C sitting on the loo with me trying to pull his trousers off!
We have also missed our station a few times as he has decided to stay in there! Needless to say we now don’t use the loos on trains.
I also don’t take C to bathroom show rooms, for obvious reasons!
Sunday, 18 November 2007
I have never been that good at optical illusions.
But the friend who sent me this said if you stare at it long enough, you should be able to see the ocean......................
I tried for a while, but I can't see ocean!
Saturday, 17 November 2007
Phil Plasma asked me (yes I am still wading through the questions) What is the 3rd thing you do when you get up in the morning.
1st Go to the loo!
2nd Put the kettle on.
And 3rd - look at my emails!
And what did I do before blogging (Did you know theres even a blogging spectrum?!) I read more books, now I read more blogs!
So what’s the 3rd thing you do? And what did you do before blogging??? And I will throw in, why did you start blogging?!
Friday, 16 November 2007
Should we need charities like this? (Just asking, am not giving an opinion)
With out charities and people who do voluntary work, where would we be? I do a lot of charity work as does my mother (she campaigns for the rights of plants, as she says like C, they cant talk and need a voice!)
I think Amanda says it very well in Getting the Truth out.
Thursday, 15 November 2007
Official business first - Who is the proud winner of the Mother of Shrek First wordless Wednesday Winners button? Well to be honest i couldn't decide!! (I wont be so generous next week!) So everyone who entered can help them selves to this;
Made by Aunt of Shrek (Thank you sis x) And thank you DJKirkby for the idea!
I recently did a post on support from family and friends but we are also supported by a variety of professionals.
There are some professionals to whom it is just a job, and don’t really understand what they are dealing with (in terms of C that is).
Gone are the days where they could come into your house and have a cuppa and really get to know you, your child and your lives. Now problems are dealt with either by email or over the phone. Very rarely do I now see a professional in person.
Yes we sometimes give them a hard time, or rather the system a hard time. But it is not personal, and the ones who are good at their job know this.
Professionals come and go, the bad ones don’t always last as they cant cope (they actually give me more stress than C does!) and the good ones don’t always last as they get promoted, move on or get pregnant!
When a professional has left, if I then see one in the town (as the mother of Shrek I have my radar fully turned on, scanning for stray dogs, small children, bicycles and teenagers who want to torment, and how I am going to manage to keep walking in a straight line (any of these causes C to head bang) I usually spot them before they see us. When they do see us they pretend not to, or turn away or even turn round. I think they think I am going to lynch them or give them the latest update on C. But all I actually want is a smile, an acknowledgement that we did - do matter and exist.
But anyway. There are good professionals out there, They don’t pretend to be the experts, they listen to you and really support you. These are the ones who want to make a difference and do care. And their reward? Under paid, over worked and poor working conditions.
These professionals are usually the social workers and they get a bad press. The social workers whom if you haven’t tided your house, or if you say you are finding it hard to cope cart your children off into care! This is not the case, if it was C would be in a foster home by now! By having a social worker you are not admitting defeat, you maybe just need that extra support.
I have had a few very good social workers in my time, and I thank each of them for going that extra mile and making me feel like a human not a case file.
Wednesday, 14 November 2007
I had Cs weekly phone call last night. Or rather the staff phone me, fill me in and then put C on the phone (if he will come to the phone) he did last night and i could hear him breathing. I told him how much i love him and what Ive been up to, i didn't get very far as the member of staff suddenly said he had gone! But apparently he had pressed the phone to his mouth with a big smile on his face. How lovely is that!
Tuesday, 13 November 2007
So if I am about to be hacked to death by mad axe woman, what will happen to C?
This is something all parents think about im sure, but for us with our children so venerable it is a big concern.
C has been abused over the years in one form or another and that is with me here to protect him. C cant talk or sign, so who will advocate for him? My siblings all have their own lives, my friends have their own disabled children.
Who will make sure C wears decent clothes, has the latest DVDs, who will notice when he is ill, or fight for him for what he needs?
And a big one for me, who will make a fuss of him? Who will give him love?
There is a possibility that C could die before me as his head banging is so severe. But I obviously don’t want that to happened or I wouldn’t be doing everything in my power to help him.
So it is a real worry. Its such a big subject yet its something we dont like to think or talk about.
Monday, 12 November 2007
Knowing nothing about Scientology, if that is what they think then I don’t want to know!!
To the rest of your question, Ive had 19 years of people not thinking C is human, and it makes me angry, upset and very sad.
Saturday, 10 November 2007
But Why asked me 'What one thing other people could do/not do would make the biggest difference to you and C'?