Monday, 20 December 2010

Merry Newtonmas Everyone

The Autism Act 2009 was the first ever disability-specific law in England. This Act did two main things.
First to put a duty on the Government to produce a strategy for adults with autism, which was published on 2nd March 2010
That's C top right
The Government also had to produce statutory guidance for local councils and local health bodies on implementing the adult autism strategy which was published on December 17th 2010
Local councils and local health bodies now have a legal duty to implement it. (What there is of it)
Lack of money will not necessarily be a strong reason not to.
It covers training for staff, identification and diagnosis of adults, planning of services, including transition from child to adult services and local leadership.

So still rather woolly and open to interpretation. But this has made legal history and to my mind should open a few doors to raising much needed awareness. It is a start. Something we can positively build on e.g we need Autism Partnership Boards in all areas.

C in the mean time has been busy in Parliament!!’s a photo of a photo of C and I used by Viv Cooper of the Challenging Behaviour Foundation in a recent joint APPG on autism and learning disability in the House of Commons to which I was invited. Viv talked about their new Charter 

So some possible hope for raising autism awareness for the future in one hand and on the other real fear as disabled people discuss suicide because of the proposed cuts to our Welnotfare system. Ministers need a Newton moment to remind them of past promises made and give them some understanding into the complex challenges that people have on a day to day basis for the simplest of things let alone trying to pay for basic needs such as heating, eating, getting around and picking up spoons etc 

"Dire consequences" for disabled people. Neil Coyle, Director of Policy at Disability Alliance
"Devastating chain reaction" for people with autism. Mark Lever, Chief Executive NAS
"Many people will literally become prisoners in their own homes." Richard Hawkes CE Scope
And we have yet to hear the fate of carers.

Some sites to check out
to name but a few.
Am happy to add more.


Anonymous said...

It's about time more support was granted. In this day and age, we should be able to move forward with positivity, knowing that help is at hand.

Nice one, CJ xx

JoyMama said...

What a beautiful thing, to see C's photo illustrating the words, "Fulfilling and rewarding lives."

I fear that we in the States look to be heading down Britain's dire-consequences-cuts road, particularly at the state level.

Akelamalu said...

I hope the cuts are not as devastating as you are expecting :(

nitebyrd said...

Congratulations on a good start. The smallest flame can always ignite a blaze with enough fuel.

It'd be a wonderful thing if politicians all over the world would get knocked in the head by an apple or something stronger so they'd wake up to what people are dealing with.

Maggie May said...

Anything that brings awareness to the problems of Autism is a very good thing.
Lovely to see C.
Maggie X

Nuts in May

Debs said...

It's a good start I suppose.

Lovely to see C's picture on the cover and the photo of you and C together. How lovely that they used that image.

Hope you have a good Christmas.x

Grit said...

what a tenacious woman you are, casdok. i can only imagine some of the legal and political processes that you must have crawled through to get here, and what that has taken from you in terms of emotional strength and intellectual work. my applause is for you, your colleagues, and all your formidable efforts! three cheers and a large glass of something warming! xxxx

Tanya @ TeenAutism said...

I hope the follow-through is as good as the start! Wishing you and C a very Merry Christmas and many blessings in the New Year. xo

David N. Andrews M. Ed., C. P. S. E. said...

Happy Saturnalia, Shrek's mum.

And happy whatever-he-likes-to-call-it to Shrek! ;)

Looking for Blue Sky said...

Gorgeous photo of C, and great that he is part of this positive step forward. Really hoping that you both have a very Happy Christmas x

Ron said...

Oh, how wonderful to see C's photo on the cover!

You GO, C!

I chime in with Nitebyrd...Congratulations on a good start. The smallest flame can always ignite a blaze with enough fuel.

I so admire you dear lady, for all the efforts you put forth, and the awareness you bring!

Wishing you and C a blessed Christmas!

X to you both!

Anonymous said...

You are so respected by me Mama Shrek! Have a wonderful year with your incredible son!

Dr. Deb said...

Stopping by to wish you a Wonderful Holiday and New Year.

Paulene Angela said...

You have achieved an amazing amount of work in the field of Autism/Special Needs, always unselfishly promoting awareness, this is sheer determination lady. Really I'm stuck for words ....
..... a huge thank you and congratulations from me does not seem quite sufficient.

May joy, love and laughter always fill your amazing heart.

Wonderful seasonal greetings for you and C.

Paulene xxx

Ellee Seymour said...

You do a great job in raising these issues about autism.

Very best wishes for Christmas to you and C.

Suburbia said...

Wishing you both a Merry Christmas


Frances said...

Sending you and C my best Christmas wishes.


Palm Springs Savant said...

Oh my that is brilliant! You have really made an impact- for which you should be enormously gratified and proud. Keep plugging away, as they say.

SuperLittleMen said...

Its thanks to people like you that awarenss is being raised, and as a mum of a young son with needs I can only say thank you and hope I can learn something and maybe one day do something to help as well. Hope you have had a great Christmas.

Malcolm said...

Brilliant blog and continue to do what you do. People like you are tremendously important in the world of Autism. You shine a bright light on some important topics and good luck to you and your son.

Elise said...

BTW ever since that particular Big Bang Theory that is all my oldest wishes ppl...Happy Newtonmass.

Chef Penny said...

Great job paving the way for others. You are doing an amazing service for C and others. God bless you!