Tuesday, 13 July 2010

Health matters

C is doing sooo well. He is really enjoying night clubs and has gone from holding 1 of my hands to a 2 handed stim  dance from behind!
Since being in his new home together we have successfully sorted out 3 long term health issues his teeth being the latest one. (Health is difficult area because of C's challenging behaviour and difficulties communicating in a way that we can understand). The difference this has made to C is HUGE. He is showing progress in leaps and bounds which is helping to boost staff confidence with him.

It has taken 10 months for C to venture out into the garden.
He is now enjoying meals out there, hours on the swing and trampoline and even a night in a tent!


Vigorous head shaking hand flapping laugh :)
Collapsing with laughter!

From pressing buttons on a calculator C is now pressing keys on a roll up piano! And I’m just putting together a talking photo album. I’ll let you know how he gets on with that.
And look at this – I still can’t believe it – at the last night club he turned round!

60 comments:

BenefitScroungingScum said...

His happiness is palpable and wonderful to see. I'm so glad things are working out for C and you with this new home. Lots of love, BG Xx

jess said...

nothing little about any of it, my dear. nothing little at all.

Akelamalu said...

This post brought tears to my eyes - I'm so happy for you both. x

Jenn said...

It IS the little things!!!

kristi said...

Wow, this makes my heart smile.

Jayne said...

Woohoo, that is incredible, Cas, you must be so proud :)

lime said...

so very delighted for you in each of these areas of progress and most of all rejoicing that he is happy.

Cheri said...

That is soooo awesome!

Queenbuv3 said...

I am so happy for both of you. Reading about his progress brought tears to my eyes because the is never a little milestone with kids on the severe end of the spectrum. I don't know if you remember me mentioning my own son's dental issues and that once we got him "up to speed" and all his decay was taken care of that he made so much progress. I'm so glad that C is improving now that his dental issues are being taken care of.

My own son has some of the most violent aggressions towards others/self-injurous behavior when he is scared, injured or in pain. It is still so hard for him to communicate those things verbally. he will repeat those words back to me when I tell him to say "I'm hurt" but won't tell us when things are happening independatly. He will say "help" but not when he is hurting, in pain, etc. just when he needs help doing something. He did say, "Scary, scary, scary" when the kitten was in his room about a month ago. She scratched him onn the eyelid first thing this morning in his room and didn't say a peep to alert me. I got upset when I saw the scratches and because I was upset he got upset.

I have always said that "behaviors", especially in non-verbal or communication challenged individuals, is their way of communicating. It is soooo important to look at the behavoir as a red flag that you need to look at what is happening around them, do a body check for injuries, rule out medical issues, etc.

C is so lucky to have an observant, intelligent and caring mom that goes beyond the surface and tries to see what is not immediately obvious to the average person. I'm so happy you have found him a home that is helping him thrive and not making life worse for him. I think that all his progress is also a way for him to communicate that he is in a good environment : )

I hope the progress continues : )

Green Girl in Wisconsin said...

Those are phenomenal milestones! You must be BEAMING with pride! Turning around--that must have made your heart stop for a moment.

rainbowmummy said...

I have no words for how happy I am for you and C.

No words.

xx

CrackerLilo said...

How wonderful for you both! I'm so happy to read this! *hugs*

Debs said...

I've got a lump in my throat reading your post and looking at those wonderful photos. I'm so happy for you & C.x

Shrinky said...

Such WONDERFUL news!

JoyMama said...

What Jess said -- SO not little.

And so wonderful.

Ron said...

Hello Dearest Casdok~

I have to chime in with Akelamalu...this brought tears to my eyes.

OMG...I AM SOOOOOOOOOOOOOOOOOO HAPPY!

*jumping up and down and clapping*

Yaaaaaaaaaaaaaaaaaaaaaaay, C!

You GO, boy!

X to you both!

Kristina Hughes said...

Am delighted for you. And for C of course! That's amazing news and so brilliant to see the pics of C really enjoying himself! Wow. x

nitebyrd said...

Casdok, how totally wonderful! Both you and C must be so happy that all the hard work you've done is proving so successful!

I love that picture of him in the tent. You can just feel the joy!

Kit Courteney said...

That is sooooooo lovely!!!!

It's made my day!

Chris H said...

It must feel so FANTASTIC to see C so happy! That new home must be perfect for him.

LceeL said...

Small victories make for big happiness. I am so glad he's moving forward. That is just the GREATEST news.

Mrs. C said...

Woo-hoo! SO glad to read this post! I wonder what C will do next?

Jean said...

His progress is so good to read about. I really need to read about positive experiences like C's XXX

Maggie May said...

My heart sings for you!
Brilliant to hear this.
Maggie X

Nuts in May

Honeysuckle said...

This is such fantastic progress! Well done to both of you and to the home staff.

Marita said...

That is so fantastic :)

Health really is important.

StatMama said...

So awesome! This makes me smile :)

Nea said...

That's lovely to see.

Dr. Deb said...

This was wonderful to read. Amazing how little things mean SO much!

kathleen said...

Oh...I so love the last picture..the hands in front..you are holding him..and in the hands in the back..he is holding you..a beautiful dance..lovely.

Moannie said...

I salute C, and I hug you. Such an awful condition so beautifully challenged and overcome so that it is the child and not the condition that matters.

secret agent woman said...

Oh, I can't tel you how good it is to hear he is thriving! Yay!!!

secret agent woman said...

Oh, I can't tell you how good it is to hear your son is thriving! Yay!!!

Tanya @ TeenAutism said...

I am so teary-eyed over that last photo. How beautiful! And I love that photo of him in the tent - thanks for sharing these! xo

Julie L. said...

Wow. He really is making great progress. Am happy for two of you.

jazzygal said...

WOOHOO..... in a night club? Love it, love it, love it!!

Fantastic news Jen...all of it :-)

xx Jazzy

Jade said...

Ohhh man Jen, my heart sped up when I read this! This is soooooo awesome! I am so glad that you and he have finally found a place where not only his safety is addressed, but his skills are growing and his environmental stimulation tolerance is increasing!! That is so exciting!! This not only makes my heart happy for him, but also for you. You both truly TRULY deserve this.

Hugs to you my friend.

frogpondsrock said...

I am smiling away down here in Tasmania. That last photo is fantastic!!!!!

mommy~dearest said...

SO happy to hear!!!
I couldn't keep dry eyes either, here. I am so very happy C is in better care, and actually enjoying himself. And the night clubs- what a hoot! My heart is filled with happiness and excitement for you guys. :)

MMC said...

What fantastic news!
I'm so happy for C and for you. Never say small things ... just treasure and celebrate your progress and your victories, my dear. And right now you have have a lot to celebrate.

So happy for you both.

Crystal Jigsaw said...

This is absolutely fantastic news. Progress is a wonderful thing.

CJ xx

Warty Mammal said...

His horizons are broadening. That's such a lovely thing to see.

TherExtras said...

Truly great news! Funny how opposite words can mean the same thing - HUGE and little.
Barbara

MommyToTwoBoys said...

I am so happy to hear and see such progress. Good for you!

Paulene Angela said...

Beautiful Post, I'm so happy for both of you. ((( )))
Px

Zed said...

Hi. I'm new here. I have been reading some of your posts (I hope to read more) and just want to say - how much I am enjoying them and recognise so much of it. The ear-pull photos are particularly familiar ;). My boy is 13, also 'classified' severely autistic so we are about to venture into adolescence. He can actually fold his entire ear up and stick it inside the 'hole'. Very effective as earplugs and always available ;)
Best of everything to your boy. Hope to find time to read more here.

KC's Blog said...

I'm excited to hear about the talking photo album! Please let us know how it goes. Sounds interesting! I love the photo of you guys holding hands! It's so very heartwarming. It's huge when our kids allow us to hug or hold their hand willingly.
C seems very happy!

laughingwolf said...

hi cas, you may want to check this facebook site:

http://www.facebook.com/pages/Artists-and-Autism/366165741773?v=wall

coolkid said...

just wonderful news

so happy for you both xxxx

DJ Kirkby said...

awwww your last sentence made me weepy. You're so right because the little things are not at all little really! Such great photos of C, nice to see him having fun!

kim said...

cheering for you guys. kudos on the dancing.

motherx said...

Thats great news !! and I love the pics so much. I see so much improvement there:) Hope he continues in leaps and bounds!! xx

Anonymous said...

I don't think it's good for C. to be taken to night clubs and given alcohol. I get it that you want him to do things that other young men his age do but C. isn't asking for those things, you're pushing them on him. Do you know what alcohol does to his neurology? Can he understand why he feels different when he drinks? Is it fun for him to be disorientated and confused even more than usual? Of course not.
The smoke, the shouting, the flashing lights the crowds aren't fun for a severely autistic person with sensory issues. You take him to clubs to make yourself feel better. You post photos of him standing there obediently holding your hands so you prove to everyone that he's "improving" and doing "normal" things. What's next? Driving a car? A date? An arranged marriage with some girl who's desperate to emigrate to the UK? That would be nice: grandchildren for you!
I say that in your quest to make C. appear "normal" that you're actually abusing him.

Working Mum said...

How fantastic! And your happpiness is evident as well. Long may it continue.

Casdok said...

Anon
I have only ever taken C to disabled night clubs. So there are no crowds, no smoking, no shouting. He has always loved flashing lights since being small and he loves loud music. He stims as close to the enormous speakers as he can get without his fingers in his ears. And this particular night he didnt have any alcohol.

He certainly isn’t standing obediently! C doesn’t do things like that! He is not the type of young man you can push things on. I wouldn’t take him if he didn’t love it and get something out of it.
In my eyes C does not have to improve and I have nothing to prove.

Lilith said...

Wow, Anon's kind of a bitch.

I'm glad C's doing well in his new home, getting out and trying new things. Katie's is finally doing well also. It's a good feeling.

Take care, Deb

Joeymom said...

Wow! He looks like he is settling in and having a great time. I think its fabulous that you have these opportunities for C, and that the clubs exist! Its a great idea, I should poke around here and see if there is anything like this for getting disabled folks out and having fun after dinnertime. After all, we're not talking about little kids!

Ellee Seymour said...

I'm so happy for you both, what a huge leap forward.

E said...

Of course it is going well. You wouldn't stop until it did. Your perseverance in the face of the struggle never fails to inspire me and a while bunch of others besides.
I am gleeful about this post
Good vibes to you and C from Vermont....

Catatab_Tabimount said...

Yeah, it's a common stereotype to say that autistics do not like parties. It is true for most of us, since we do not like huge crowds, loud music, alcohol, and being around a bunch of people we do not know. These days, kids are playing awful music as well.

But I do not mind going to small baby showers or birthday parties with people I know very well. I do enjoy meeting new people, and many times I have met them in these sorts of parties. I like dancing to music and bright lights, and chatting about general things with my friends. When I am 21, I probably won't mind having a little beer as long as I won't be biking home (I don't drive, but if I ever do, it will probably be very seldom. I hate how the US is so dependent on these individually ridden, gasoline/battery powered machines.)