Friday, 14 August 2009

Touch wood

I still can’t quite process the fact that C’s new home is working really well!!




Learning from all the negative things the last home did, I talked at length with this new home - they have listened and put everything into practice.
It hasn’t all been plain sailing – but it is positive.






The last home C refused to let them take his helmet off. This time C is refusing to let them put it on him. Rather worrying for me, but his head banging has been minimal, and the staff have been learning fast. So he was obviously telling them he didn’t need it.





Apart from listening to both C and I. The main reason it’s working out so well is at the moment C is the only person in the home. The provider has about 12 homes across the county, they had a few vacancies (because of people moving into independent living) so had a reshuffle making C’s home just for school leavers. C being the first one in there means anyone else moving in will have to be compatible with C. He has about a month before the next person moves in giving plenty of time for the staff and C to get to know each other. I couldn’t have asked for better timing.

And talking of good timing. The week C left the old home I received a questionnaire from the Autism Accreditation programme (they review every 3 years) asking my views on the service provided! As you can imagine I had a lot to say! I am also taking up C’s experience with the Care Quality Commission.


So as C’s life is picking up and beginning to take on a new positive shape I am trying to come back down to earth after a couple of years of stress. I am so relieved I had the strength not to give up and accept things as they were. It at times has been very emotionally wearing but so far touch wood it has been worth it.




Am off to Autscape next week - should be interesting :)

92 comments:

Honeysuckle said...

Brilliant news. I can imagine how great it is to have C the first one in the home. Buster was one of the first in his home and it made a huge difference.

Mrs. C said...

Yay! Yay! Yay!

We have a "great" PECS-type card and it looks like your "happy," but has little fireworks next to it. :]

Jeni said...

I'm really happy -and pleased -for you and "C" that you found a place for him that is doing what these homes are supposed to do -alleviate stress for the client as well as the parent and provide good care while doing that.

kathleen said...

That is just wonderful news! I think that sometimes we don't know how stressed we are until the stress gets somewhat reduced...then we look back and say whoa! that was a rough time! Heres to hopefully some smooth sailing ahead. :)

jess wilson said...

you are a force, lady. no one messes with mama bear.

strength, resolve, love, care. you got him where he needed to be.

bravo!

Green Girl in Wisconsin said...

what great news! How wonderful for C--it sounds perfect--especially the part about him being the standard to which everyone else must comply.

on our end of the austism world, I'm taking on a writing student who is 17 and has mild autism. I'm excited to work with him!

deb said...

Glad to hear good news, gives me hope for Katie. Take care.

bobbie said...

This is such very good news!
You must be feeling on top of the world. You have traveled a long, hard road in many ways, but if this works, it is all worthwhile.

Autscape sounds very interesting. Do let us hear about it.

Green-Eyed Momster said...

I love Bach Remedies! I took some just yesterday and I'm on vacation! I'm smiling ear to ear, Casdok! I'm so glad that you fought for C's happiness and your own peace of mind.
Congrats to C and you!!

And, hugs!!

Mama Skates said...

yay! sooooo happy 2 hear this!!!

Ron said...

YAAAAAAHOOOOOOOO!!!

BRAVA, dear Casdok!

OMG...I am SO HAPPY for you and C!

I was so excited to read this post on my reader, I started clapping!!

HAPPY! HAPPY! HAPPY!

All of your wonderful efforts and strength not to give up have come to fruition. And I know it wasn't easy for the two of you, but you did it!!

Hey, I know a little about Bach Flower Remedies (and have used them), so I was very excited to read this at the end of your post. I use a lot of natural remedies for myself and have found them very effective.

Have wonderful weekend, dear lady!

Love and hugs to you and C!

{{{{{x you and C x}}}}}}

Betsy said...

That is super great news! Now, you need to destress...yes, I can see how lavender fields would relax you...breathe deeply! :)

The Green Stone Woman said...

Well, good for you. You need some respite. It's been a tough journey. Enjoy yourself now as much as possible and relax a little. You deserve to treat yourself well.

3laine said...

Such brilliant news! I'm very happy that things finally seem to be working out for you and C.
Well done for never giving up. I know it must have been really stressful at times, but all your hard work has really paid off. Wishing the best of luck for C in his new home.
xx 3laine

JoyMama said...

Wahooo!! You did it!

What spectacular news!

Petunia said...

That is fantastic news! It will really benefit C having another month to settle in before others move in. Well done for fighting for a better and happier home for C. You are inspirational. xx

Maggie May said...

I am so happy for you and C. I had been wondering about his new placement over the last few days and how he was getting on.
I really hope you will be able to relax now and have some time just for you.
Enjoy the tranquility of everything knowing that C will be looked after properly this time.

Kahless said...

Yea!

I am so happy for you both.
xx.

Debs said...

I'm so relieved and thrilled for both you and C that things are working out so well. Well done for perservering like you have.

Love lavender fields and your photos.

Maddy said...

Real jammy dodger timing or what!

Lady in red said...

I am so pleased for you both

Rosie said...

hurrah result...autscape looks interesting...I wonder if we have them in france

mumkeepingsane said...

Oh yay! I thought by the title of the post that it would be positive.

I'm glad C is in a place where's he's treated how he should be, with respect.

Niksmom said...

Smiling at this. I am so glad things seem to be working out for C and that you can breathe a bit easier.

Cheryl said...

You and C have been in my thoughts this past month. I am thrilled that it is working out so well for C and that you feel he is safe and respected. What a wonderful feeling.
Enjoy you trip. Love the Lavender fields.
XXXXXX

KC's Blog said...

Awesome news! I love that he's the first one! Hooray C! Sounds like your a happy guy and I am so happy for you and your Mom!

Anne Brooke said...

That's such wonderful wonderful news - congratulations to all!

Love & big hugs

Axxx

Trish said...

I'm in tears I'm so happy for you and C. This is such wonderful news!! Enjoy your trip. :)

Osh said...

:)

Sandi McBride said...

Seems that communication is finally a key that fits the present lock. I'm so happy for you and C...equally!
hugs
Sandi

Queenbuv3 said...

I am so happy for you and C!!!! You both deserve happiness!

datri said...

Oh, that is such wonderful news!!!

Jayne said...

That is wonderful news, I'm so happy for you and C :)

therextras said...

I'm smiling for you and C.
Barbara

starrlife said...

Oh my gosh- I am so happy for this turn of events! Now for a well deserved break for the wonderful Mom! You are incredible!

Warty Mammal said...

This is fantastic! Very promising. It sounds as though the new staff are more perceptive as far as picking up on C's signals, and he in turn is getting less stressed out.

I will continue to keep fingers, toes, and various other limbs crossed.

Julie L. said...

Great Post as usual. You and C deserve a good experience after the other one.

Wow, C's communication about needing or not needing the helmet really seems to sum up the differences between the two homes. --and the timing is just what you two needed.

Loved the Pecs. Hope you have a good time at Autscape.

secret agent woman said...

Oh, I'm so glad to hear it! You must be incredibly relieved.

DJ Kirkby said...

Oh hurrah!!!!!!!!!!!!! What a lovely post to read. I like the very last picture lots too. xo

menopausaloldbag (MOB) said...

How amazingly fantastic for you and C. I was warmed through to the bone reading this today. I have no doubt you will sleep for Britain when the stress levels drop - you need this so much. ust maybe you will get some real quality tome for yourself which can only be good for both of you. Timing is all and what a bonus for C to get to know the staff and vice versa. It can only bode well for all concerned. Oh I am so thrilled for you both. Take care of yourself and big hugs! X

Elissa said...

How fabulous to finally have things fall into place. Wonderful news for both you and C!!! xx

MarmiteToasty said...

Huge smiles this morning after reading this post...... sometimes one has to sift through the chaff to get to the wheat.....

Im so glad that you feel more at peace with where C is now..... things will go from strength to strength now......

x

Kim (frogpondsrock) said...

I am so pleased for you both.. Yay.

CrackerLilo said...

Touch wood indeed! I'm so happy for you both! *hugs*

Beth said...

So happy for both you and C.
And of course all the work & stress was worth it. As a loving and devoted mother and a passionate, committed person, did you really have a choice?
Kudos to you.

Crystal Jigsaw said...

Couldn't have come back to better news. So pleased at long last. My love to you both.

CJ xx

VAB said...

That's fantastic. Add my applause to the rest ringing around the world.

Patrick @ Caregivingly Yours said...

So glad to read that the path has turned for the better for both of you.

Caregivingly Yours, Patrick

Akelamalu said...

That's wonderful news! I'm so pleased for you and C. :)

A Bishops Wife said...

I am very, very happy to hear that all of this has gone so well thus far.

Your timing was awsome!

Hippy Mama said...

so pleased for both of you :0)
A field of lavender sounds good !!

nitebyrd said...

I'm so glad the hear that no only is C doing well but that you are beginning to reduce your stress level. (((hugs)))

Tanya @ TeenAutism said...

Oh, such happy news! And I love how you put the PECS images in your post - I worked with those a lot in Nepal! Nigel no longer uses them, but they used to be his main way of communicating.

Sending lots of love and positive thoughts that things will continue to be well at C's new home! xoxo

Chris H said...

How neat that finally you and C are settled again.
I know it's been rough for you both.

K said...

Just found your blog will come back and read more
So glad C is happy

lonestar said...

This is such good news, I'm glad to hear C is doing well! Your feelings of relief after so much stress are clear too... you did good.

Celeste Maia said...

What a relief to read these good news! I am so glad C has a whole month to adjust and the staff to adjust to him, so by the time other kids join he will be perfectly at ease with the place. It is true that one learns more from a failure than from a success, but I wish you you did not have the bad experience before.
Enjoy yourself now a bit and relax as much as you can. Sending hugs from Portugal, Celeste

DES said...

I saw this on my side post and I actually yelled "YESSSSSSSSS!" LOL! I'm SO happy for you both...and so proud of you as the wonderful mom you are. Give me hope and courage when my time comes!

all my best to you and C!

DES

CAMILLA said...

Oh this is such wonderful news for you and 'C', so pleased for you both, it really must be a weight off your mind now that 'C' has found the most perfect home.

Thanks for the tip on the Bach and Lavender, they do say this is very soothing.

xx

Working Mum said...

I'm so pleased it's working out this time. It sounds like C has found a home rather than a place to live. And hopefully you can rest easier knowing that he is well looked after.

jazzygal said...

That's wonderful news Casdok. I am delighted for you both...you both deserve this. Well done on not giving up, that would have been the easiest route to take and it is understandable that some don't have the energy to keep fighting.

I hope this placement continues to work for C. xx J

Club 166 said...

Smiles...Lots and lots of smiles :)

Joe

Paulene Angela said...

Reading this post has made my day brighter, I've read through twice already absorbing all the positive news, wow.

Truly happy for you both.:) xxx

I am familiar with Rescue Remedy, it's wonderful, worked for me.

The Autscape looks really interesting, shame I'm not in the area, I'll try to get my carer friend to go along.

Kelley @ magnetoboldtoo said...

Bach Rescue remedy literally saved my life...

Babe, this post made me cry. With happiness and relief.

I just wanna hug you.

claire p said...

I am so happy things are working out. Let's hope it continues x

lisadom said...

Smiling as I type! So delighted for you Cas!!!xx

Seamus said...

The words "...working really well!!" was wonderful to read! :) It certainly sounds like a lot of good is happening.

Mistress B said...

oh Casdok! That is awesome news!

I can't tell you have pleased I am for you that things have turned around.

Rebel Mother said...

Oh, hurrah! I am so pleased C is settling in well - and it is good that there will be other kids his age (or near enough) coming soon.

Have rest sweetie - you fought hard and you won.

Very proud of you

Much Love RMxx

Territory Mom said...

thanks for stopping by my blog. I love yours. C sounds like a wonderful man. you have a new friend in Oklahoma.

Thumbelina said...

Read this before but didn't comment. That is a pattern of mine recently it seems!
Glad that C is settling and it is a perfect set of circumstances that he has time alone first to get used to things. The first impressions are that things are good here.

I'm packing up blogging but will still visit from time to time. Last post is up. You two take care of yourselves.

Elizabeth McClung said...

Great news for you and great news for C - I am really glad that C is not banging so much and that the staff want to get to know him and work with him. I find the audacity of these types of questionaires sort of amazing - but maybe they do impliment changes?

I like the picture of you in the lavender, that is a very nice peaceful picture.

Really happy reading.

Ellee Seymour said...

It's great to hear all this good news about C, I am so pleased for you. I do love the lavender fields. I bought some lavender oil in Dubrovnik for a massage. I really like it.

Suburbia said...

That is absolutely fantastic news.

:)

LAA and Family said...

I'm so happy for you and C, hearing the good news about his new home!

Dad Stuff said...

Great news. Prayers for it to continue.
Rock on, C!

Dazza said...

Wow, it's great that things are working out for you and C... that's great. Good for you... hope it continues to get better.

Dxx

Dave Coulter said...

Oh, that's great news for both of you....It's nice to see that you're "stopping to smell the flowers along the way" as well!

earthlingorgeous said...

That's great to hear. I can feel you happy from afar. :) Touch wood indeed.

Hey I love those PECS images do you know where I can get more of those? Thanks in advance.

buffalodick said...

Glad to hear the good news! Now you go out and have a little personal fun!

mommy~dearest said...

Wonderful! What a relief to hear. :)

LceeL said...

I am so glad - so VERY glad to hear that C's new home is working out so well.

Now. I have a question for you i don't know how to ask - so maybe, instead, it would be better if I do this - Do a Google search of "Horses and Autism". Maybe?

Casdok said...

Earthling - its actually easy to make your own http://www.ehow.com/how_2148037_pictures-pecs.html

Lceel - Ill email you!

Medusa said...

One difference between we Yanks and you Brits is you touch wood and we knock it. lol

Thanks to Jeni for turning me on to your blog. I'm new to blogging.

I to hope he continues to adjust well. My son is in a residential approved private school and can stay there until he is 22 at which time he would transition to a group home, which scares the crap out of me. Here in the good ole land of the stupid and home of the greedy, group homes can be very scarey places.

My approach with his residential placement was to be the crazy red headed monster. I wanted everyone to know do not mess with my kid or it will be the wrath of Medusa coming down on you. Not sure that is effective but I was half crazy by the time he got a placement, and had fought for so long. Well I'm still half crazy.

I know how helplessness feels and it always inspired anger in me. Actually I think every emotion turns to anger these days. Or as my friend says, "Gets my Irish Up."

I can give one hell of a tongue lashing, so if you ever need back up, I have a phone, just give me the number. lol

Palm Springs Savant said...

Brilliant! I am so pleased for you, and glad things are working out.

MMC said...

Great news!
So happy to hear things are finally going well for C. And, by extension, you. Just goes to show, I suppose, the appropriatness of that old mantra "Never Give Up".

Joy said...

That is awesome news! I am so very happy for you and C that he is somewhere you are both comfortable with.

Marj aka Thriver said...

Saw you over at Dr. Deb's and realized I hadn't been here for a visit in a while. Nice to catch up. The new home sounds like it may be "meant to be" with the wonderful timing, etc. *fingers crossed*

Is that actually YOU in the lavender field? I would LOVE to go to Provence and see the fields there. Thanks for that link. Aaahhhh...I feel more relaxed already. Take care.

Jade said...

Ohhh my friend I can not even begin to tell you how this post lightens my heart. And those yeah and happy icons made me smile. They look just like the ones I use! hehe

I know you're a very busy woman, but I would love, love love! An email from you describing the new facility and his new case worker.

My friend you and C are in my daily thoughts and prayers. My apologies for not being as present as I would like to be.
XxXxXxX

Frances said...

Good morning,

It has been far too long since I have visited your site, and I am totally delighted to see this latest post.

As always, I send best wishes to you and to C.

xo

SeaThreePeeO said...

Hi first time reader!

I have an 11 year old daughter with high functioning Autism

You can read about her over at http://anathroughthelookingglass.blogspot.com

I hope C's life continues to follow this very positive route!

Leigh said...

Am so glad it's working this time. Have been thinking about you both a lot over the summer - every time I see the Spinnaker Tower or a branch of Waterstones, at least! - and have been hoping for good news.