Friday, 27 February 2009

Update

C and I were minding our own business as we do ( he was feet watching and I was watching him) when suddenly 6 'armed' police men swooped down on him at our local airport. Thankfully they just tried to talk to him as he was acting suspiciously!!!! I stepped in, and they left with apologies.

Incidents like these (its not the first time) are the least of Cs and my worries at the moment. Its been 2 months now since I made it known to Cs case manager that I want to remove C from his group home. Nothing happens fast as they have to have holidays. So am playing the ‘funding game’ which is why i cant just take him out. Thankfully years of experience of this has held me in good stead even though it is different in the adult world, but I am getting there slowly.

Cs home has not improved and to give you a taste of their ethos this is the CD they gave C for Christmas. And yes this was after C had been to a night club!



And that was after they told me what they were giving him and I told them in no uncertain terms that I felt this was totally inappropriate (or words to that affect!). They went ahead and gave it to him anyway.
I wont go into how this made me feel as I'm sure you can imagine.


It has been taking a toll on my health. Being a single parent is hard at times. This being one of them making such huge decisions, especially as I don’t want to get it wrong again.
I have found another home, an assessment has been requested. The new home is not autism specific, and they have the opportunity for independent living for the future which is great as I do love the idea of this, but not just yet for C. I recently went to a meeting at The London Autistic Rights Movement which was very inspiring.

I in 5 care homes inspected by the CSCI fail to meet the national minimum standards. Which does not say much for the state of social care in the UK. There is a culture change from not just the size of the room and where the medication is locked up to more about needs and expectations particularly equality dignity and human rights and with the new Valuing people now document this will continue over the next few years.

Disability has been in the news this week. Apparently we have a new scary CBeebies presenter!!
And I am sure you have heard the very sad news of the loss of David and Samantha’s son. My condolences go to the family.

And in Milan on criminal charges of defamation and privacy violation in regard to a video posted on Google’s Italian site of a young man with Down syndrome. Not sure that it will get anywhere, but at least it is being taken seriously, as you know this affects C.

The Autism Bill is being debated in Parliament today, it has had great support. So i look forward to hearing the outcome. Just heard apparently it went very well and is now through to the next stage. You can watch it here.

And i would like to say thank you to Suzanne for making me this beautiful dress which was inspired by my CD and C's love of reflective light. I was really chuffed!
And i would also like to say thank you to Cathy, Neo-Conduit and Viva Vavoom for all giving me awards which i have put on the side bar of my Faces blog.
Norah - could you email me as i pulled your name out of a hat to win a signed copy of the Shrep rap :)

Think that is all my news for now. Will be back again to let you know how things are going. But its all so painfully slow.

Oh and be aware of the Easter rabbit.

122 comments:

BenefitScroungingScum said...

Cas, I think about you and C often. I'm so sorry to hear things are not improving at his home-that Xmas present is outrageous, how could they even think that?! I'm glad the police listened to you though! Lots of love, hugs and support, BG x

Maggie May said...

My Goodness you are having to face difficulties.
That card is a disgrace.
Sticky situation with the Police. Glad you were there to sort it out.
I really hope you have much better luck with the new home.
I really feel for you and hope you feel better soon.
Any Mum would be upset about all this. X

Mrs. C said...

((Hugs)) I kinda thought things were going tough. I had *thought,* though, that you were busy physically settling C into a new place and did not write. I am very sorry. I wish there were something I could do for you. :[

I hope C enjoys his CD anyway and annoys all the staff with Mary Had a Little Lamb and other assorted hits. (Hey, you might as well have fun with it!)

Moannie said...

Good grief, how scary that must have been for C when the police pounced. And what a tangled web you have to negotiate daily. My admiration for all you mums is huge.
Huge hugs

Debs said...

How frightening having those armed police swooping down on poor C. I'm glad they listened to you and apologised.

I can't believe the present the home thought fit to buy for C, especially after you telling them that it wasn't appropriate. I do home you manage to arrange for C to move to the other home soon.

I was staggered when I heard the story of that poor presenter. What is wrong with the parents who complained? x

The Dotterel said...

Yep, a particularly important day in the House of Commons, and there've been plenty of e-mails to MPs of all partys. Fingers crossed for them, and fingers crossed for you and for C.

DJ Kirkby said...

This pos tis so full of info that I will need to come back a few times to take it all in. First I want to say sorry for not getting you the contact info for that lovely home where I live. I forgot, I am so sorry. Second, I can't believe that anyone could think kids would be scared by someone with an arm missing! I am sure the person who said that can't have children. Thinking of you and C and missing you. xo

Jen said...

It certainly sounds like you are making the right decision, and I know how difficult that decision is- it's always in the back of my mind whether Dylan's really in the right place or not.

Take care of yourself- it's so stressful, and you won't do C any good at all if you're not healthy. Please do the self-nurturing things that you can, and keep yourself healthy. You deserve it for yourself as well as C.

Beth said...

I know it's hard to do in the midst of yet another battle (battles) but do try and take care of yourself - your health.
Wishing you and C all good things - now and in the future.

Suburbia said...

Gosh, that Christmas pressent is very telling isn't it? I feel very indigant for you both, from a distance.

Holly Nappi Collins said...

I'm am also sorry that things are a mess right now...and yes, it does seem that C is not in the right place for him, not just based on the most inappropriate x-mas gift--OMG. Look forward to hearing more... stay well--your son needs you!!

menopausaloldbag (MOB) said...

Oh I can just imagine how you felt about the Chrismas gift. They clearly believe they know best for your son. Such arrogance taking your voice away and ignoring your wishes. I hope you get C moved soon as the indifference the staff show at his current residence will no doubt be to his cost in the end.

All the best with it...

Jenn said...

I wish you all of the best in getting C into a place where he can be respected as the person he is. The home he is in should be ashamed of the present that they gave them.Nothing makes me cringe more then seeing adults being treated as if they are children, no matter what their disability may be. You should give them a thank you of coloring books and crayons all wrapped up in pretty paper and ribbons. Upon C's departure from the home(:

Norah said...

It's always good to hear your updates.

I hope you can get C out of there and to a new place as soon as possible. I can't believe they gave him that present! It's awful.

I also hope you're doing ok and nothing bad will happen to your health.

Betsy said...

I hope all goes well in finding the new home. Your posts are always so interesting and informative. Does C still like Thomas the Tank Engine? I'm wondering if the staff is confused about his varied interests and sided with the juvenile. Still, they should have chosen something else after you expressed your disapproval.

Bonnie said...

Oh Casdok, my heart goes out to you and C and I hope that you can find the right place for him that will set him up for success. Doesn't seem that as Autism parents, we are always on such a mission? A very tough mission it is! Thanks for the update and God Bless you guys!

Molly C said...

I wouldn't give that present to the 7 year old boys on the spectrum that I work with

We listen to the beatles, and other appropriate pop music. Their parents actually thanked me for introducing them to music that didn't come from kids cds

I think about you and C often as well, and I hope that things go well with finding new placement for him.

bobbie said...

Cannot imagine anyone supposedly aware of the needs of their charges actually giving C this Christmas gift. So discouraging, to say the least.

The need to wait so long for action in removing him from the facility is so frustrating.

I too, think of you so often, and keep you in my prayers.

mommy~dearest said...

Wow, wow, wow. Please remember to breathe. It sounds hopeful that one of the homes you're investigating is Autism specific though? Even so, I can imagine your apprehension. Big hugs to you and C!

Warty Mammal said...

Scary being approached by the police. I'm glad they had the sense/compassion to listen to you.

It's a good thing that you documented C's treatment at the "home" regarding his weight loss, grooming, and information about head-banging being withheld. At a very minimum, he just isn't thriving there.

Wishing you and C the best -

She said...

Sending prayers and hugs and lots of love your way!

kristi said...

As always, I am thinking of you two. Hoping you find a new place for C soon!

She said...

Sending lots of love and prayers and hugs your way.

Bobbi said...

((hugs))

Traceytreasure said...

I was so excited to hear from you! I had to come right over and see what you two have been up to! It breaks my heart to hear about stories like the one in the airport. I'm so sorry. I hope everything goes well for you both! I have my fingers crossed and hoping all goes well. Rockin' dress and congrats on the awards. You deserve them all!
Big hugs for you both!

rainbowmummy said...

I had better not even bother comenting, I'll only work myself up. Nice to see apost from you xx

rainbowmummy said...

Sorry no. A f ing childrens cd, he is in his twenties!!! You told them not to give it to him, you are his mother.
no stopping now,...

Green Girl in Wisconsin said...

thanks for the updates--I keep you in my prayers. here's to good living soon for C!

Flea said...

I would guess that the police action means that C was blending right in, with the exception of his feet watching activity? That's good and hopeful?

Hugs to you, ma'am.

Mima said...

Casdok, sorry to hear that you both are having such a tough time, I really hope that you manage to fight your way through the hoops and are able to get C into a more suitable home.

Rosie said...

C has been dealt some difficult cards, but he was first in line when it came to Mums...

lime said...

it must be so difficult to be patient. i do so hope that sooner rather than later he can be in a place where he is treated respectfully and cared for lovingly.

a nightclub and a nursery rhyme book? neither of those seems appropriate really.

Kahless said...

I am thinking of you and willing loads of positive energy in your direction.

Elissa - Managing Autism said...

I think of you most days and wonder how things are travelling with C's home... it's so difficult with the time that it takes to do anything through the system!
It's great news that autism and 'valuing of people and their rights' is moving through government... autism is on the Australian government agenda at the moment, and really stiring up the pot with services etc. so we're hoping that will have an impact here too.
Much love to both you and C, and our prayers and thoughts are with you through this time. xx

teeni said...

That's very discouraging how that particular group home seems to disregard your wishes and is not respective of C's age when choosing gifts. I don't see how they can think that treating him like a child is going to help anything. I do hope for better in the one you are checking out now. You and C are always in my thoughts and prayers. As for the privacy violations you mentioned in this and a previous post (cell phone filming), I wanted to mention for your readers' sake that the reason you can't solve the problem by speaking to the teenagers all the time is that you are looking for the best resolution in the long run for your child. Someday you may not be there to speak to them or to look out for C, and C most likely will not be able to request them to stop himself, so the best resolution is a law or something to try to keep it from happening in the first place. This would help C and many others who can't speak up for themselves. Just because they can't speak doesn't mean they give up their rights to privacy.

Chris H said...

I'm glad you are getting C moved, obviously those that work in his present home haven't got any idea! That Christmas present just sucks! Shame C didn't/couldn't throw it back at them.

Patrick @ Caregivingly Yours said...

I am always in awe of how ALL single parents juggle everything involved in the love and caring of special needs.

Caregivingly Yours, Patrick
http://caregivinglyyours.blogspot.com/

Marita said...

Thinking of you and C and keeping you both in my prayers.

Kelley said...

I just shake my head in wonder at what planet these people caring for C are on.

I understand your feelings of 'getting it wrong' but you know that you did what was best with the information you had, believing that this place was ideal to cater for C's needs. Shame on THEM.

Wish I had more words of comfort or support, but know that I think of you and C often.

Marj aka Thriver said...

Seen you over at Dr. Deb's and I thought I'd take a look at your blog. Kudos to you for being such a great mom! And I love the lyrics on the rap song. Awesome!

Melinda said...

my thoughts are with you too....finding the perfect place is so difficult. I cannot imagine the terror you probably felt seeing the police swoop in on C. WOW....a nightmare come to life! Glad that turned out okay. Many times I have wondered if I should carry PROOF of Noah's diagnosis in case something ever happened. This has crossed my mind more than once. I do have some things in the car marked "autistic passenger on board-may not understand verbal commands" but....maybe I should print off a copy of his official diagnosis sheet!

I wish you the best. Hang in there.

Maddy said...

If they don't ask and make a mistake that's one thing, but to ask and then completely ignore your input is ludicrous.

I do like the sound of the new home with the possibility of assisted living in the future, and I think a mixed ability home could turn up all kinds of possibilities. Wishing you luck with the funding plank.
Best wishes

Mary P Jones (MPJ) said...

I'm so sorry to hear that things aren't improving at C's home. Best to you in your search for a new one. I'll be thinking of you both.

Carolyn said...

C is sooo lucky to have the mother he has. Bless you both.

The Finely Tuned Woman said...

I think of you and C often and wonder how you are and now I see that you are off fighting gargantuan battles. I have a lot of admiration for you and admire the way you never give up. You're one hell of a woman, Casdok and nobody better forget that.

Get Off My Lawn! said...

The infantilizing is a bit disturbing. I'm not sure its any better anywhere else in the world. Probably worse in most places. Hope the new place turns out better.

lisadom said...

That Book should be used as evidence that the care home just is wrong!
The Senior Pecs people were always telling me about observing such things in Adult education settings, and I was chuffed to see the latest PECs cd included icons for nail polish, blusher and foundation, so the non-verbal young lady can make her requests for shades.

I wish I could introduce them to my highly verbal 11 year old Boo who is always requesting things I wouldnt want an 18 year old to be watching "Friday the 13th" and "Gran Tourino", but which young men find very appealing. I do let him watch and script out "King of the Hill", The Simpsons and Futurama, but draw the line at Southpark (which he adores) The cupboard full of story books and nursery rhyme books and alphabet books is sadly untouched these days - gonna have to donate them (which will break my heart, not his)


I think it just goes back to that "bless em" type of attitude where it is percieved that if someone can't speak, they can't think. And it affects stroke victims and the elderly as much as our community.

As for the airport scenario? I was waiting for that to happen at every stop along the way to Aus, and I think the passport control officers all gave us dirty looks until I produced the blue card to explain why Boo was running up and down the arrivals and testing the barriers. That is why I carry the Bluecard as the picture speaks very loudly and quickly to someone with an AK47, in a universal language. The people at the Irish Wheelchair association let me have one as I told them I was going through Heathrow and Singapore, very security paranoid. - and I promised not to park in their spaces! (which I don't)

Cas: you have so much to fight for but as it is your love for C that motivates you, you must not feel bad about any small errors along the way. When you are doing it all yourself it makes it easy for others to stand back and let you get on with it (not fair) and there is no one to say WOW you are doing an amazing job.

Plus: raising children is a process. We don't get clear instructions or an alan key to put them together according to a set plan. We all have to muddle through as we go along.
But what ever you do, you do with love and respect.
xx

starrlife said...

Great to hear from you and sorry things are rocky at C's home! All I could do is repeat others comments but Geesh- that book ticked me off! But there was alot that bugged me that you mentioned. Love the dress BTW! Hope you find a better place- all around!

Working mum said...

Oh, it is taking a long time and you are facing lots of difficulties - I really feel for you. I hope you find a more suitable place for C soon.

PS I was truly appalled at the BBC's decision to remove the CBeebies presenter with a disability from the screen. I thought her appointment was an excellent step forward by a channel that shows Something Special and has signing on programmes at the weekends. I thought it would be an opportunity for children to see that disability needn't hold you back from achieving. How sad that the Beeb caved in over the presenter.

claire p said...

I have all this to come I guess. What a head fry! I really hope you fins somewhere. Have you heard of the Camphill Villages? I went to one once and they're great. I'm looking into it for Jamie (I know he's only five).

Take care of yourself xx.

Honeysuckle said...

I thought things must be tough as the blog's been quiet for a while. I'm sorry it's so hard - of course, having flagged up that you're removing C from the home, they're probably now getting defensive and will be even less supportive and amenable than usual. The Christmas present was outrageous and they obviously don't value your opinion as C's mum. Do you have a good social worker? Or a local Parent Council?

Bear in mind you didn't 'get it wrong' last time; the home did.

Wishing you less sterssful times and better health. And all good wishes to C too. What sort of music does he like? Buster's going to see Thunder for his 19th birthday (not without a little trepidation on my part!)and while I think he'd probably listen to The Wheels on the Bus if it played, it's not really something I'd be encouraging at this stage!

Paulene Angela said...

I do like the sound of the new home you would like for C. I understand how you want to get it right this time, it is emotionally and physically draining all of this day in day out battling, taking 5 steps forward and sometimes going back 6, but we have no choice but to keep pushing, if we do not fight for our children then who will.

You are doing a fantastic job, do not forget to treat yourself to a glass of champagne now and again, also watch a funny film and laugh.

The present, I had the same crap last christmas, a totally inappropriate gift, you know it disturbed me for the week, I went from being really really angry to being upset and really down. I could not understand the logic behind giving such a gift, the only thing that came to my mind was that the person who went out shopping did a massive bulk "cheapy" buy and it was that gift or nothing.

Sounds like C really needs a young male carer around, one who is thinking on the same level, disco music, football, rugby, internet, etc.

Sending you big hugs ... love your blog.

Casdok said...

Thank you everyone.

Claire P
I have looked at Camphill and do like the idea of them but they wouldnt take C as he is not able enough.

Honeysuckle.
C's home as yet do not know what i am up to. I want to find somewhere first. As you say their attitude will change when they know so i want to be ready to go!!
So far i have been quite pleased with C's social worker even though we have never met her!! She has been to them home and told them of my concerns and gave them an action plan to follow to put things right. They havent been able to do this, so she is all for me looking for somewhere else.
C loves 'rock' music!!

Pauline - C actually has a young male key worker - he was the one who chose the CD!!

Osh said...

Hugs for you and your boy

Paulene Angela said...

Perhaps C could introduce rock music to his male key worker !!
Paulene xxx

whimsical brainpan said...

I hate that things are going so slowly for you and C. The sooner he is out of that home the better. I am stunned that they gave him that CD for Christmas!

Frances said...

Good evening Casdok.

Once again, I do salute your strength, wisdom, patience and understanding.

C is a fine son, and has a marvelous mom!

Surely there will be a place that will be the place that will care for him, and encourage him, and will be a place that has many wise folks around.

Wishing you both all best wishes. xo

Halo said...

Sorry things are still rough at the moment. I do hope you start to see another light at the end of the tunnel. And i totally agree with paulene angela! What on earth were they bloody thinking giving him that toddle music!!?!!

earthlingorgeous said...

(((hugs))) Cas you are a wonderful mom, I hope you'll find the right place for C soon. Chin-up. I know its not much but I want to give you the best mom award. God Bless!

earthlingorgeous said...

ooops forgot where you can pick your best mom awards and friendship awards: http://www.earthlingorgeous.com/2009/03/1st-of-march-thank-you-for-blog-awards.html

Lane said...

It's always so good to read an update from you. I'm sorry things have been so crap. You work so hard that it's bound to take a toll on your health. Please take care of yourself - although I know that's easy for me to say.

I hope you find the right place for C soon.

Jocelyn said...

I learn about 24 things everytime I come here. But mostly I'm gasping this time at how insulting that Christmas gift was. So eye-opening.

Unrelatedly, the dress is amazing!

Crystal Jigsaw said...

It never ends does it, but it's always a reward for the parents who succeed. Love that dress.

CJ xx

Niksmom said...

Oh my. So much going on all over, isn't there. I'm so glad C had you there for him with the airport police! Yikes.

I am appalled at the gift the caregivers chose for C. It speaks (unflattering) volumes of how well the connect with him (which is to say, clearly not at all). I like someone's idea fo introducig some serious rock music to them!

I keep you & C in my thoughts always even though I don't always have time to write you. Sending you love and good wishes. I'm hodling a vision of a wonderful home for C and some restful times for you as well. xo

citizen of the world said...

Yikes to the CD. How insensitive.

It's constant work for you guys, it seems like, navigating in this world.

Club 166 said...

I can't believe they persisted in giving the book, after you told them it was inappropriate.

What were they trying to prove? That they knew better? Or that you didn't matter at all?

Good luck with getting a new place. It's obvious that it's the right thing to do, and I guess it's better to find out now instead of later.

Joe

Joeymom said...

"Safeguarding" someone in an inappropriate environment that has proven itself to be actively defiant of appropriateness? I don't think so. I hope the new place works out much better.

Tanya @ Teenautism said...

Sorry to hear that you haven't been able to move C yet - as you said, it is painfully slow. That CD is really maddening, just inexcusable. I will be thinking of you as your search continues. Love to you and C.

buffalodick said...

I see you as an "Iron Mom"- you never give up!I have to speak honestly, lest you misread me... I admire you. The battle you fight is a hard one. No one would ever doubt your integrety, or motives... The battle you fight is never ending, but I recommmend you take a break once in awhile.. So that you can be all the stronger...

LceeL said...

Do they NOT understand - there is an adult in there? Behind those eyes - between those ears - is a living, breathing adult, trapped in there, betrayed by his body and the wiring of his brain? Do they NOT understand he needs the respect accorded ANY adult? That he has the needs of a grown person - that he is NOT deserving of such patronizing attitudes? You would expect these people to KNOW.

Akelamalu said...

Red tape and more red tape,I hope it doesn't last too long. You're doing a great job for C m'dear I hope it works out right very soon. x

JoyMama said...

Thinking of you. That's a lot to have on your plate all at once! Here's to brighter days ahead.

the mother of this lot said...

I'm so sorry it didn't work out. I hope the next place is better (when you finally get there)!

E said...

I figured that you'd been quiet for a reason. I think of you and C often.
I remember how long it took you to find this place and arrange the funding so I assumed you were headed back into the eye of that storm.
The food news for C anyway is that he has you as his advocate. Imagine what it must be like for all those whose families are less educated and less able.
It is depressing.
But your advocacy will help others too, because you are creating awareness everywhere you go.
I'm sorry this is so hard Casdok. You are brave and constant and you are an inspiration to us mere mortals....

buffalodick said...

Sorry the wheels of progress aren't turning faster for you... Try to take care of yourself- it's important!

LovelyDemonChar said...

just hang in there i promise it will get worse...but in return it will be better then u've ever imagined. true me on this as things with my mom have gotten worse i am sure they'll get better

E said...

We have had some sad news over here. But then I remember what you go through, with strength, grace, and good cheer and I aim to do better than just curl up in my jammies in the corner.

Dazza said...

All the best with this... once again. Nice to see the video on your frontpage.

Daren
xx

Dave Coulter said...

Try not to let all of these setbacks get to you. Easier said than done, I'm sure ;) Hopefully springtime will usher in some good news - and if not at least it will be sunnier!

Anne Brooke said...

Sending hugs and hope - I do hope it works out for you and that you take care of your own health too. Sorry there's no advice I can give but I'm thinking of you both.

Axxxxxxxxxx

NEO-CONDUIT said...

I hope the police apoligised profusely! The C.D is infantalising, I wonder if anyone really takes into account your sons needs and enviromental enrichment? I totally understand why you are moving him. You are a great advocate for your young man, and a fantastic mum.:)

CC said...

Continued hugs!!!

Shrinky said...

I wish you well and hope C will soon be able to settle into a more appropriate living arrangement. I am speechless at the wholly insulting CD he was gifted - what were they thinking of? By a strange coincidence I have just posted about the failings of social services. Sigh.

deb said...

Hope you find a wonderful place for C.

Dr. Deb said...

It is so hard to work the system here in the US too. I hope that the next placement will suit C better and offer a sense of comfort and reliability for you as well. What an awesome mom you are.

Jules said...

A children's CD for Christmas? Yep, you definitely have another reason to pull him out of there.
Hopefully his new home will treat him more like an adult and encourage personal growth. Good luck on Monday. Hugs...

motherx said...

Stupid policemen! typical, it must have been hard for you to stay calm.
A child c.d!!! that sums that place up pretty well, very thoughtless. I hope you find somewhere soon, must be a very trying time. Im sorry.

Mistress B said...

I hope the funding and assessment process gets done quickly so that you can get C moved soon.

laughingwolf said...

rats to the coppers!

hope the new home is as great as it sounds, cas :)

Jade said...

Life has been challenging for me lately and I haven't been able to make it by as I like to. I am so sorry to hear that things are still going as frusteratingly as ever. I"m hoping that the case worker steps it up like she has promised.

You are amazing my friend. Your dedication, grace, and will motivate me and renew my faith in parents every time we correspond or you post. My biggest hugs and loudest prayers to you and C.

XXXX

Ellee Seymour said...

That is a fabulous dress. Lucky you. You are obviously very slim too.

rhemashope said...

Praying for you and C.

Cath said...

Casdok - Sorry I haven't commented in a while. I do get over and keep up from time to time.

I am just appalled at the care home. It makes me ashamed to have been a nurse at times.
Thoughts and prayers with you both and you are SO doing the right thing - playing the "games". Experience is worth bucket-loads of knowledge sometimes.
Hang in there.

BenefitScroungingScum said...

Hi Cas, Just stopping by as I've not seen you post for a while. How are you and C getting along? I hope things are improving with the home situation? Thinking of you both, love BG x

Casdok said...

Thanks BG - am getting there i think, will know more next week. Just been rather stressful.

Inthemud said...

Hi ,
Not been by to see you lately but had a moment so came along to read your blog.

Can't believe they gave C a Nursery Rhyme CD, no wonder you want to move him.

Good Luck my dear friend!!

Palm Springs Savant said...

It just doesn't seem real that in this day and age there is still so much confusion and lack of understanding around autism. I must tell you that the efforts of people like you and others have really been bringing this to light. I have really seen and heard a lot more on the issues of autism in the news, blogosphere, etc.

I really appreciate how you share so much here.

And that airport incident- yikes.

blessings to you- keep the faith.

MarmiteToasty said...

Know you are BOTH in my thoughts...... hugs to you and C

x

E said...

Hi Casdok. You have been on my mind. How is the new home search going? How are you and C holding up? Are the people at the current home behaving beter or worse knowing that you are leaving? I can imagine both.
Catch us up and let us hear from you....

Casdok said...

Hanging in there thanks!
They are being told on friday, as C has now been assessed by the new home, so all systems go!

rainbowmummy said...

Oh that is wonderful:0)

blogthatmama said...

Good luck with C's home Casdok, hope you're well and looking after yourself too. Blogthatmamax

Elaine said...

As you are very well aware, the prevalence of children being diagnosed with an Autism Spectrum Disorder is increasing at an alarming rate. We would appreciate your assistance in helping us try to identify if the use of epidural analgesia/anesthesia and Pitocin during childbirth have any association with the development of autism.

If you are willing to participate in a survey questionnaire, please email Elaine DeLack, RN at elaine@edmsllc.com and the questionnaire will be emailed to you for your completion.

Thank you in advance for your participation in this research.

Anonymous said...

Gee, I was just thinking of you because I was back at your first comment in my blog; the one about eye contact and "behaviour detection cops" in transit areas.

(http://rynosseros.com/2007/09/17/mandrake-gestures-spasmodically/) - that post - and I come over here to read this!

Most sorry to hear about the descending clump of plods and the other stresses: I hope some good things happen soon to counter them.

Ryno

KC's Blog said...

Always thinking of you and the "C Man." I always tell Big Brother, "time to check on the C Man" and he knows I am going to Casdoks blog.
He likes to read too.
You guys are in our thoughts and prayers.

Tina

A Bishops Wife said...

I hope you and C are doing well.
I have been so busy with work and school I do not get around much anymore.

Good Karma to you !!

LceeL said...

I have been so very, very busy for the last two weeks - I haven't been visiting sites and commenting like I really enjoy doing - but now that i have a minute i just thought I'd fly by here and ask how you're doing? And see that everything is, in fact, okay?

Noddy said...

I don't know if you have been following this matter in all your own troubles, but it made me sit up and pay attention.

As an aside, I received a workgroup email which for the first time 'educated' us bobbies on the do's and don't relating to autism. Long overdue but somewhat tokenistic.

Take care.

Casdok said...

Lceel. Had some progress today, so am feeling a bit happier.

Noddy. Yes i have been following this stroy. My heart goes out to this young man at what must be a really difficult time for him.
Hope the email was useful - even if tokenistic.

Noddy said...

For others I'm sure it was and a little bit heart-warming for me to see they had woken up to the issue.

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Casdok said...

Thank you anon.
Anyone care to translate?

Donna Cooper said...

Just to let you know...I'm BACK (Afer a long time MIA)
Hope you'll drop by and check out my blog again.
www.hisgraceamazesme.
blogspot.com

God bless you bunches!
Donna

E said...

How was the new home? And how did C's assessment go? is the old home being cooperative? Ohhh I need so much more.
When you feel like it Casdok...Namaste

Casdok said...

All will be revieled!! Am brewing up to doing a post!

frogpondsrock said...

I thought that I had left a comment here when you first posted this..*sigh* I am getting a tad forgetful lately.. I just wanted you to know that You and C are in my thoughts and
I wholeheartedly agree with Lou's (LCEEL) first comment... (((hugs))) to you both xox kim

Sandi McBride said...

Dear Cas, so sorry I've not been in and then I read what troubles you're having with C's group home and the way they treat him like an infant...and what in hell were the police thinking? Exasperation must be about to take you over! By this time I am praying that all things have come to a very satisfactory conclusion and that you can at last take a deep breath and relax! Thinking of you and C...
hugs
Sandi

Dr Chun Wong said...

What a ridiculous present and completely inappropriate for C's age and needs. I've just read your most recent post and I'm glad you've sorted out a new home for C, I hope you'll both be happy with it.

Anonymous said...

But maybe he likes the nursery rhyme songs. Just because he got dragged to a night club doesn't mean he's suddenly all hip and into gangsta rap.
And I doubt he'd be interested in taking a girl on a date unless it's to a shoe store.
It seems to me that parents of autistic teens are so desperate for their kids to seem like their neurotypical peers that they overlook the kids' level of functioning. I've heard of parents being embarrassed by their autistic teenager's liking for Thomas the Tank Engine or the Wiggles but if that's what the kid likes isn't it the main thing that he's happy?

Anonymous said...

Maybe he'd prefer headbanger music.

Casdok said...

C loves headbanger music!
Totally agree with you about my sons happiness being the main thing :)

Anonymous said...

More beer for C! And a spliff, too.