Saturday, 15 November 2008

Hope


I was very pleased to hear that the plight of fruit and veg who were discriminated against because they did not comply will soon be over. Maybe there is hope for the rest of us!


Earlier this week I attended the Carers UK summit which was very interesting. There were lively debates and voting on many topics. Phil Hope MP, Minister for Carers gave a great speech. Because he has some first hand experience of caring he knows many of our issues. He is very new in his job so hopefully very enthusiastic. He urged us all to email our MP’s so to keep our views on the political agenda. Carers UK do some excellent campaigning and influence many policy makers. And is free to join.

There was a wall where we could put up our thoughts.

Whilst in London I also took the opportunity to visit Stephen Wiltshire’s gallery. I’ve seen his pictures on TV and on his website, but it was great to see his drawings in person. He is very talented. I treated myself to 3 of his prints (well post cards as couldn’t afford the originals!) Stephen also sent me this photo to my on my Faces of Autism blog which you may have seen.

So a great day in London, but I did miss not having C with me on the packed commuter trains as people give us a wide birth!

Other news:
Id also like to mention my dear friend DJ Kirkby (who I had the great pleasure of meeting a few weeks ago). DJ was diagnosed Asperger earlier this year (by the same person who diagnosed C!) and has written a book which comes on sale soon - so a great idea for a Christmas present! Tickets are on sale for what sounds like an exciting book launch. I am hoping to travel down with the beautiful Halo - your welcome to join us!

And Kev at LeftbrainRightBrain has launched a new website called Autism Myths - its worth checking out.

69 comments:

Chris H said...

Nice that you had such a good trip away, and enjoyed yourself, even if you did have to contend with packed trains!

TOM FOOLERY said...

Thanks for the Stephen Wiltshire link - talent with a Capital T methinks TFX

Half rabbit said...

I'm glad you had a great time and hope you have lot's more.

DJ Kirkby said...

Oooh thank you for the mention. I would love to see an exhibition of Stephen's work.

bobbie said...

So happy that you enjoyed the gallery exhibit.
So many links! I have explored a couple of them, and thank you. Very interesting material. Much of it is over my head, but I enjoy reading it, an do gain some knowledge along the way. DJKirkby. book sounds like something I will investigate.

Julie (VV) said...

Thanks for the Wiltshire link - had lost track of him recently - and the other links. Glad you had a good time.

Mel said...

We've just celebrated our first year with the Asperger center. Last year we had 12 kiddos...this year we're at 22. It's been such a needed and well embraced project.

Thank you for the links....I'll be going for several visits!

citizen of the world said...

I hadn't heard about the perfect-only fruits and veggies rule. How silly, but glad its done. It's a metaphor, you know?

Mrs. C said...

How anyone can be worried about misshapen fruits and veggies and then go eat a Twinkie is beyond me.

Glad you had a great time at the conference!!

akakarma said...

Wow, that post was chock full of information that I need to look into. Hope the boy is well and glad that you had a great time, except for the tube.

Dave Coulter said...

Sounds as if the summit was very productive. Your day a day in London sounds like a nice treat also...I hope to get back myself some day :)

Oh, and odd-shaped, dinged up veggies are every bit as good their better formed kin. I remember this every time I see celebrities on TV ;)

Kit Courteney said...

Wow, those pictures are amazing. And lots of great links incl. the DJ Kirkby one. The book looks very interesting so will definitely buy (for myself, not as a christmas gift to give away!)

Stimey said...

I want to tell you how much I love your Faces of Autism blog. It's wonderful!

Moannie said...

Have been watching Stephen grow up since we were first introduced to him. Actually saw him drawing that great panorama on a TV docu. Fantastic.

Happy that you had a good time.
As to the fruit and veg rule...well. It was all to silly for words. Now perhaps we can get produce that actually tastes good, again.

Rosie said...

at last, the rights for veggies campaign has born fruit!

Joker The Lurcher said...

hey! we are going to the book launch too! i'll get to meet you at last!

Paulene Angela said...

I jumped up and down with joy when I heard the good news regarding fruit and veg. Although some of the "uniform" produces over here are crying how much money they are going to lose.

I personally go out of my way, usually at the local market, to look for the non-uniform fruit and veg, completely different taste and quality.

buffalodick said...

Glad you had a good day, dear!

blogthatmama said...

Sounds like you had a really great day, action-packed and exciting! Will be buying the book, again for me, not just for Christmas!

Palm Springs Savant said...

Funny, I was just thinking of you and wondering if you have been getting out much to do things. i am sure you do miss having C with you.

this was an info-packed post, I need to re-read, particularly about the fruit and veg part.

teeni said...

I am so glad you had a chance to see those images in person at the gallery. It's such a neat experience as opposed to on television or in photos in books. But I am just sitting here with my jaw on the floor. I had no idea there was such a law about the fruit and veggies to begin with. Why on earth would anyone waste so much time, energy and money on such a silly, trivial thing? I cannot get my head past that. There are so many more appropriate ways to expend that energy and money. I'm disgusted. So if they have changed the laws back then that is a good thing and let's hope that nothing that stupid ever gets passed again. **shakes head in disgust at lawmakers**

Ron said...

WOW....Casdok!

What a wonderful post, filled with wonderful information!!!

First, I'm happy to hear about Carers UK!!!! I think it's a PLUS that Mr. Hope is new to his job, because enthusiasium is what's needed sometimes to create change.

Secondly, I went over and checked out Mr. Wiltshire's gallery and really enjoyed it. I especially liked the black and white pieces!! The one of Toronto is sooo cool!

It really SOUNDED like you had a great day in London!! Which reminds me....I just finished RE-watching a movie called Wilde...about the life of Oscar Wilde, and the shots of London were AWESOME! Also...it's a enthralling film!!!

Thanks for sharing all this "good stuff" today, Casdok!

Enjoyed!

Love to you and C!
X

Have a nice weekend!

Paulene Angela said...

I had to rush out so could not complete my previous post. I know how you feel not having C with you, it's a strange feeling, like you keep looking around until you realise he's somewhere else. My son loves London, especially the trains, trains and more trains oh also the open top tourist bus that goes around london, it's a fantastic way to see the city.

When I get 5 mins. will look into the book and regarding Carers UK I'll remind my friends who are carers based in the UK to sign up, if they have not already done so.

Green Girl in Wisconsin said...

Thanks for even more resources.

I've been deliberately pairing off with a teenaged boy in my karate class who has autism. My reward came after much patience when one day he made eye contact with me and SMILED! We have trust between us after months of work.

Jade said...

So glad to hear that you had a nice weekend away. Its nice to get out and do things that stimulate our thoughts and souls.

I think its great that you were able to meet DJ. I've meet a few people in person that I've met on line through different interests and issues. It has always turned out wonderfully.

Here's to you having another great weekend ahead! :-)

Suburbia said...

Sounds great to be involved in the summit. Glad you had a good time in London :)

Elissa said...

A great day out by the sounds of things... shame about not getting the extra space on the train (LOL)!
Love to both you and C xx

rainbowmummy said...

I am so jelouse of you all getting toether!

Kelley said...

Your comment about missing having C on the train made me laugh. It is the same in the supermarket. If I am on my own people bump into me or butt their trolley into me at the checkout. When I have Boo I have tons of space! LOL.

Smootches babe.

Cheryl said...

I'm so glad you had a nice time in London. You really deserve it! I'm so thankful that you were involved with the summit. I could not think of a better person. Thank you for all the links and the wealth of information. It will keep me busy, that is for sure.
XXXXXXXXX

Halo said...

I would love to visit London to see Stephen's work. Londons only up the road so I will have to make a point of going next time im there.

Honeysuckle said...

Loads of stuff here to look into when I get chance. Sounds like you had a great time in London.

Buster's now 19 and after we've been saying for years that he's got loads of autistic/Apserger's traits (altho' maybe not classically autistic) the psychologist who came to see us recently actually acknowledged that we have a point! I don't know if it's the same everywhere, but in Buster's case the experts themselves seem to have missed the point that it's a spectrum, and now it's all a bit late...

Akelamalu said...

Sounds like a very worthwhile and enjoyable trip.

Mama Zen said...

I love Wiltshire's work!

Debs said...

A fascinating post, as usual, Casdok. Glad you had such a good time.

I'd love to visit Stephen Wiltshire's gallery, such a talented chap, and incredible pictures.

I'll definately be buying DJ's book, can't wait to read it.

Trixie said...

I never even KNEW about the fruit and vege rule until this week! How bizarre!!!

I'm hoping to meet you at DJ's book launch Casdok!

Traceytreasure said...

HOPE is my favorite 4 letter word next to LOVE! I will check out the book. Sounds like you've been busy and having some fun too! Good for you, Casdok!!

Hugs and love for you and C!!

Jayne said...

I read about the fruit and veg and couldn't believe what I was seeing!
Bizarre!

Tanya @ Teenautism said...

Thanks for the link to Stephen Wiltshire's online gallery. His work is amazing and I would love to see it in person some day. Nigel and I will have to take a trip across the pond!

J said...

Bring on the lumpy, bumpy and curvy vegetables!!

Wish I could attend DJ Kirkby's book launch, but alas I cannot cross the Atlantic again anytime too soon.

Glad you had a nice day in London--crowded trains and all. ; )

nitebyrd said...

I'm glad you had a good time. I'd love one of Stephen's NY prints but will need to wait. Seeing his work in person must be amazing.

My Autism Insights said...

I watched a documentary on Stephen Wiltshire recently and he is absolutely amazing! Thanks for the link to the gallery! And it's wonderful you had such a good trip!

Crystal Jigsaw said...

Talk about being jealous!!! I'd love to meet Halo, DJ and travel with you to the launch. If only I could...

Sounds like the carers summit was a success. I'll have a look into it and probably email you for more info.

CJ xx

Trish @ Another Piece of the Puzzle said...

Sounds like a wonderful trip and conference - so glad you were able to participate!

Also glad to see the concepts of acceptance and diversity spreading far and wide - enjoy your knobby cucumbers. :)

The Dotterel said...

Love the opening, Cas. Only you could have made that connection!

MarmiteToasty said...

Ive been fighting for the return of the mis-shaped fruit and veggies for years :)

Sorry I aint been over here, only every time I clicked on your link from Twaddle it took me to C's birthday post and I so didnt know you were still posting.... so I have much to catch up on....

Im glad you had a good day out in London and even got to meet a blobber...... the guy with the drawing is amazing, I saw him on someone elses blob to...

hope you are well, love to you and C

x

Jade said...

Just wanted to drop you a note to tell you thank you for all the support you have given me over the past month. It is greatly appreciated. People such as yourself help me to create hope in my heart. :-)

LceeL said...

I learned a new word today - neurotypical. As in, people unaffected by a neurological disorder. I had never thought in those terms. neurotypical. neuroatypical. Not disabled. Neuroatypically ENabled. Not disabled. Does this make sense to anyone but me?

Marla said...

You are so lucky to go to the book launch for DJ KIrby! I am excited for you! I hope it is a great time.

dawn said...

Thanks for stopping by , you are always a welcome fresh breath of air and a saint I wish I could be more like you.

Flea said...

Casdok! So good to see things always moving forward! Good to hear you hopeful! Off to check out sites to which you've linked!

david mcmahon said...

The gallery sounds fascinating.

athenivanidx said...

hey Cas wassup?

C sounds really cool........

I hope the home works out for him.

Perhaps you and others in the same boat should band together.....come up with funds..........start a home or care system of your own?

some kind of parents' guild...if the home isn't doing things to your approval..........

You're C's mother, you HAVE to be very demanding......and have high expectations. Which you do.......you also need OPTIONS.

take care

and say hi to C for me

Ivan

Dianne said...

you made me laugh so hard with that 'wide berth' comment

Working mum said...

Me, too dianne!

I am also pleased about the fruit and veg ruling - how absurd to throw away decent food because of its shape or appearance - it's still valuable and useful! I didn't think of the wider inference that you did though! Clever!

E said...

Okay your comment about losing Shrek took my breath away.
Hurry. Tell us the story...pleease

My Autism Insights said...

P.S. I just had to nominate you for an award at my blog. And it keeps with the theme of fruits and veggies...sort of. :-)

Grit said...

and your new blog is fantastic! keep up all your good work!

The End of Motherhood? said...

Congratulations on the new blog!

Kit Courteney said...

I know you get millions of awards - and deservedly so - but I'm afraid I'm plonking another one on you for your 'Attitude'.

I've learnt so much. You are an absolute credit to your son, and I have no doubt he is a massive credit to you, too :0)

Merelyme said...

Lots of links to check out! Thank you.

Mima said...

Another friend of mine recently went to visit Stephen Wiltshire's gallery - I watched an amazing documentary on him and it must have been a great experience to go there and actually see his work in person - lucky girl!

Kahless said...

Food for thought; I dont consider myself as a carer, even though my partner is a wheelchair user.

DJ Kirkby said...

I've tagged you and I am really excited about seeing you and C next week. N3S has a long list of things he wants us all to do...ahem...we might manage a couple of them depending on the weather. xo

Nancie said...

Glad you have had a great day in London. Thinking of you and praying for you and C. Thanks for your visit and encouragement. Take care! Hugs.

Maggie May said...

I have just written a post on my grandson's recent diagnosis.So far we haven't had much help and don't really know where to start.
What literature do you recommend for Autistic spectrum disorder?

Mike Foster said...

Hey, I am still recovering from my shoulder surgery, but wanted to drop by and comment on your latest post. I still read lots of posts but cannot type for extended periods of time, so my commenting is limited. I enjoyed this post and I am glad I dropped by.

peace,
Mike
livelife365

claire p said...

Hi Casdok,
Thank you for this blog. Our little bot was diagnosed as autistic this week. At the moment he is also non verbal (although he 'sings' to himself all the time), But he is only 4 so speech might come. He also has Sotos syndorme and hydrochephilus. But he's so happy, such a joy. I look forward to reading more.

autismeditorial said...

Thankyou Cas; you gave me and my oldest autie friend a good laugh with the vegetables!
and thanks also for the Autism Myths link. My own autie advocacy group invited a couple of Cure-all speakers to our AGM on Saturday and I gotta say it felt like I had found out a good friend believed the earth is flat and there was no such thing as evolution.
There were slides of spurious graphs and charts with all the "metal" levels but not a scrap of peer reviewed, double blind evidence based science.
I was really upset.

Thanks also for the link to Stephen Wiltshire. I usually avoid anything to do with autism on my recreational trips to LDN, but for this I will make an exception.

xx
(Hammie)