Saturday, 28 June 2008

Food for thought

When I am stressed or anxious I comfort eat, my weaknesses being cheese and pasta. C is the opposite, he wont eat at all, so will go for days without eating. So with Cs impending move we are both anxious and dealing with it in our different ways.

Since the day C was born feeding has been a struggle. He would quite happily or rather unknowingly starve to death.
Its not because he is a ‘picky eater‘. Eating is a complex motor task as well as having many sensory issues, which C (I think) finds all too much at times. He finds using a knife and fork too difficult so prefers to finger feed, when he does eat. Chewing is also a problem. Hunger just does not seem to register. I recently read that his long thin bones are due to his diet, or rather lack of. No surprise there!

C will have fads, if he eats it will be the same thing for a year or so, and then just stops eating it. But this has become shorter, becoming months.. It takes me a good few days of trial and error to find something else he will eat. (I wont go into the amount of food i have to bin.) He has also had fads of eating non food items (Pica)!

I haven't had C tested for food allergies because the range of food that he will eat is so small. He does unsurprisingly have stomach problems, due to his not eating. Its a vicious circle.

C is painfully thin, just laying in a bath will bruise his back as his bones stick out. I’m just amazed how he has grown to over 6 foot or has the energy to stim in the way that he does, on such a meagre diet with hardly any variety.

So i don't have any tips to share about helping your child to eat, i think i have tried most things. But would love to hear yours if you have any!
I found this fascinating post and comments over at NTs are weird, which if your child has eating issues I think is an interesting read.
Do you have any food fads?

117 comments:

La La said...

Thanks for stopping by my blog tonight and for leaving a comment.

Your story is one that I will come back and read! I read only this post tonight because it's midnight, but I will return to learn more about your journey with your son.

My food fad: I eat a lot when I'm anxious, too. Sometimes I also pick one food and eat every day for weeks and then I get tired of it and choose something else. I definitely need some balance and some self control in this area.

Suburbia said...

It must be very worrying to see C so thin.
I go for chocolate when bored but when I'm stressed I can't eat.

Take care. I will blog you more cheese and pasta to keep you going!

Suburbia x

akakarma said...

I've had times when I don't eat when I'm stressed and times when I can't stop eating when I'm stressed!
I do have a friend who has eating issues and, as an adult aspie she has elicited a small list of foods that she relies on. She discovered that she could eat meat if it was prepared certain ways, ie,-for chicken, all of the tendons,cartilage and veiny things removed and then she cooks it into a mushie texture, same with hamburger. But basically she survives on brownies and cookies! She also has bouts/cycles of fads that are intermingled. I'm curious about the long bones though,hmmm...
I'll skip over to the NT's are weird to read now! Thanks for the comment BTW!

Jen said...

I wish that I had some helpful tips- we have constant struggles with our kids' food. The girls are so thin that it's appalling- I have no idea where they get their energy from.

Aside from sleeping, eating is one of the most difficult things that we have to deal with on a daily basis, and I have serious concerns about the girls' long-term health. Thanks for the link to NTs are weird!

Nancy said...

I hope the move goes well, even though it will be trying for both of you at first. I'll pray that C gets into a comfort zone with it as quickly as possible.

I love this photo of him. =)

Nancie said...

It must be hard to see C so thin. I eat for comfort too when stressed. I am praying for C and you. Hope he improves. Take care!

laughingwolf said...

like you, cas, i foodicate under stress...

sorry your son's life is compounded by food ingestion... hope it changes for the better

Odat said...

Wow..what a vicious cycle....Bless you.

Pizza is my downfall.

Peace

ChainingMagic said...

Thank you for you lovely comments, Casdok! :)

I like to eat cereal when I'm stressed, it's easy and I don't feel too guilty about it lol!

My smallest guy has some of the same feeding issues as your son. We took him to an ophthalmologist the other day and found out he is extremely nearsighted. R needed general anesthesia to be examined, there's no way they could do this otherwise. We are hoping that once he can see better his sensory issues will even out a bit.

BenefitScroungingScum said...

How great to see a post from you again Cas, but I'm sorry to hear things are so stressful. (((hugs)))

I don't eat when I'm stressed, in fact it's only in the past couple of years (driven largely by stomach problems) that I've started to eat regularly and more healthily. Before that I could go weeks without meals surviving mainly on chocolate and sometimes crisps. I'm not sure how better to explain the lack of eating than saying it's like your stomach just shuts down, and for years I rarely felt hunger so wouldn't eat unless I did.

I watched a documentary recently about children who don't eat, or just eat limited foods. One of the kids had aspergers, though she was very high functioning. The focus was on a specialist dietician who eventually managed to introduce foods, but mainly by working with the families to help them understand.

None of that's very helpful, sorry! I hope things settle down soon, hugs and love to you both, BG x

Dave Coulter said...

I remember when I was growing up that I went through food fads.

Anyone who grew up in 60's or 70's surely remembers the "lemon years" when suddenly everything from furniture polish upwards had to smell or taste like a lemon.

My 10 year old willpower succumbed to this marketing pressure by asking my mom to fix lemon Jello for a couple months! The fad eventually passed.

As an adult my diet is pretty well set. I have simple tastes, thankfully!

Here's hoping that as C gets older he'll settle into his own pleasant dietary "rut" ! :)

Flea said...

Casdok, I'm sorry to say that none of us here have ever had an eating problem. :( The anorexic patients I now work with have to supplement with Ensure or Carnation Instant Breakfast until they get to the bottom end of their normal weight range. And if C will do anything creamy or shake like, try a scoop or two of protein powder in it, perhaps. I'm guessing you've probably already tried any and all of the powdered protein and vitamin supplements in his fluid intakes? They can probably be added to fruit juices as well. Myoplex is an excellent supplement.

Bad mommy said...

It's good to see you back! I hope that C's placement will be PERFECT, and that the stress and strain of getting him situated will be short and absolutely worth it.

We have restricted eating around here, and problems with texture. One of the things that my son would always eat, even when he couldn't really coordinate chewing and swallowing, was goldfish crackers. They practically melt in your mouth. I am unsure whether these are actually sold in the UK - I'm very uninformed! And swallowing issues make for a problem with any feeding.

Could he be fed for a short time through an IV? I realize that this is a very troubling thought, and something of a last resort, but with light sedation and a deadener at the site, he may be able to get an IV for several hours that would give his body something to work with -- and probably needed fluids.

Best of luck with all the changes! Thinking good thoughts!

Bettina said...

Thankfully this isn't an issue for us.

I hope things settle quickly once the move is made.

hugs

buffalodickdy said...

You didn't mention drinking, or how he does or doesn't deal with that. The product Ensure (tradename) is used alot to supplement older peoples diets who lack appetite. They use this concentrated liquid supplement-which actually doesn't tase bad at all. Good Luck, and go have some cheesy pasta today!

WesterWitch/Headmistress said...

I had a lot of problems with Robot Boy when he was younger - stick thin hated pretty much all food - except chip, baked potatoes. Often had stomach pains and was sick. Getting him to eat was an uphill struggle and he ended up being an outpatient at the hospital. I suffer from Anorexia - although it is pretty much under control these days - and was worried that I had passed this on to Robot Boy. He seems to have grown out of it now and Wildchild hasn't had eating problems. Very worrying at the time though - so to some degree I can empathise with you.

I stop eating when stressed - I feel sick all the time when I am stressed and can't eat.

My food fad at the moment is Scottish Steak Pies . .

Niksmom said...

Thanks for the link to Joel's post; I had missed that one. I'm not sure I agree completey that we NT's only have eating "disorders" or problems stemming from body issues. As I have become so tuned in to Nik's multiple issues-- many around eating, I have come to realize that I often eat for purely sensory reasons. Not necessarily enjoyment, but b/c I need some type of strong oral input. Stress aggravates it, too.

bullet said...

Is he better at drinking things? Would he try smoothies? If so you can add things like silken tofu to increase the protein and bung a load of fruit and veg as well into it. Tom is fairly restrictive about his food and will only eat a set amount of things but isn't worryingly restrictive. I go for the opposite extreme and mix up things like bananas with mustard or drink vinegar but I also go through phases of having to eat the same things over and over.

Ron said...

Hello Casdok...

It's ALWAYS so wonderful to see that you posted!

My friend in Florida talks of the same thing about her son. He's a good eater...but he does have eating fads, such as you mentioned.

I remember a time when she told me that he was actually eating too much and that she had to hid the SWEETS from him.

(he has a "sweet tooth")

As for me...I'm more like C. When I stress or worry I lose my appetite. I DO go through my eating fads. My likes are similar to yours (cheese and pasta). I'm also a HUGE sweet eater (dark chocolate).

(Godiva is my favorite)

I also have fads of eating nothing but things like hummus, veggie burgers, and salads.

I sort of eat whatever I feel like at the moment.

As always, dear lady...I'm sending you and C much "good energy" and LOVE!

Thanks for stopping by my place to say hello...it's always a special treat!

Have a wonderful weekend!

the end of motherhood said...

Raising my hand here with another vote for eating for comfort. Do it all the time. This time of transition sounds so difficult for both of you...

Casdok said...

Buffalodickdy and bullet, C drinks really well as long as its either blackcurrent or lemon squash. If i try and hide anything healthy in it, he will stop drinking for a few days.

Cheri said...

It's not good to stop drinking too! That's a hard one! Zach will eat anything, as will I.

On Joels homepage he has a section in which talks about confusing sensations (http://www.thiswayoflife.com/senses.html). He understands that he must eat to survive, but I doubt C understands that at all.

I would imagine C would not tolerate a feeding tube. I guess the only hope is for things to calm down as soon as possible!

But, you've come this far - you'll get through this too!

Dianne said...

Jessica Seinfeld has a book (and a website) called Deceptively Delicious. I got the book for my daughter-in-law since she loves to cook but my son hates to eat just about anything healthy.

It's basically a recipe book for creating purees that can then be hidden in foods, as soon as I find the book I'll see if there are recipes that could go into C's two favorite drinks.

I'm so sorry C is so painfully thing, one more thing to worry about!

My brothers and I all have over-eating issues. Even now all these years later. We lived in a very chaotic, abusive house and as kids we would take food and hide from the crazy parents and just stuff our faces. To some degree we still do that - the pushing the feelings down with food thing.

If you don't have a food issue it is so hard to understand how food and eating are intertwined with emotions and your senses.

Ed said...

Hi Casdok,

I don't know if this will help or not. I have a couple of ideas. I've been in medical hospitals several times from being at an alarminly critical low body weight and been fed electrolytes intravenously . For me it has seemed to be mainly related to stress, depression, and meds.

Sugar gets metabolized extremely fast at a low body weight and the craving can be quite intense.

Also in terms of comfort, Dick Gregory wrote a long time ago about how we are comforted with seratonin at both ends of the weight spectrum. Both cycles seem equally difficult.

At this point to help C get back to a healthy weight, water, fruits and electrolytes (NOT GATOR AIDE) are essential maintainence but any food that is slower burning and anything else and slows down his metabolism will help turn things around.

Akelamalu said...

It's bad enough having a child that is a faddy eater but one that won't eat must be terrifying. I feel for you honey. x

Maggie May said...

I can overeat if I'm moderately worried, or stop eating if I am really upset. I can also alternate between the two. Not good.
I wish I did have the answer to the food fads, but I don't. My eldest grandson (who may be mildly autistic) is painfully thin and does not (in my opinion) eat enough to keep a fly alive! Eldest grand daughter is extremely picky and takes forever to eat! Smallest one eats like a horse! Youngest grand son eats heartily of the things he enjoys!

Inthemud said...

Hi Casdok,

When I'm really stressed I can't eat hardly at all, but mildly stressed I crave chocolate!! I'll have some later I think!

John-Michael said...

All through reading, and sensing (to the degree that I can) the intense levels of Demand that must accompany your daily life, my inner Spirit kept asking "Does she have Someone to grant her the Gift of some compensatory attention and care?" For, having invested 34 years to focus on my son's needs and requirements, I have an intimate knowledge of the drain and depletion of Self that accompanies such involvement. All of that to let you know that your devotion is understood, appreciated, and admired ... whilst your individual, personal care and pampering is hoped for and prayed for ... with affectionate respect.

namaste ...

~Miss Nelson said...

When I am stressed I eat too much. I am working on changing that habit. July 1st is my start date for focusing more on my nutritional health.

I agree with buffalodickdy about the Ensure. Will he drink anything like Ensure?

Casdok said...

Unfortunatly no. He is very suspicious if something he knows dosnt smell right, so wont touch it.

bobbie said...

I'm happy to see another post from you, but sorry to hear how stressed you both are. I hope that takes care of itself once the actual move takes place.

It was nice of you to stop at my blog too. I think of you often, and wonder how I might post more on the subject of autism. My knowledge is so limited, it's frustrating to me. I do care.

Mrs. C said...

Casdok, you're back!!! Hope things are going well with transition.

Elf has had eating issues, and so has G. All those parenting advice books that tell you just to take the old food out they rejected and keep reheating it at each meal and they'll eat it eventually are FLAT OUT WRONG!! You just have to do whatever works. C is obviously well taken care of no matter how thin he gets! I'll bet you've tried everything! I don't wonder that there are meds to "stimulate appetite," but unless things get desperate I don't know if I would try it either.

Many hugs! Here's hoping that dream job lands in your lap soon.

Debs said...

I think you know best how to encourage C to eat and don't think anyone would know better than you what to do. It must be so hard for you though. I know my son just sometimes can't be bothered to eat although has a healthy appetite most of the time and I worry even at those odd times.

I comfort eat like you do and always the wrong things, chocolate, crisps etc.

motherx said...

My food fads tend to be anything unhealthy!! Ive never been a fruit eater and always get shown up by D who is so disgustingly healthy!! Boys have always been very picky. Z especially and you always have to serve him every meal by saying "Ok Dont eat it!" before hand. Then he will eat it, also it has to be served on my plate. W eats a lot but only things he likes, like chicken, bacon, chicken, bacon and CHIPS!

the mother of this lot said...

I'm with C - when I'm anxious I can go for a week without eating! But then I'm not all that keen on food any other time either...!

Joeymom said...

You are in good company. When Joey is stressed, he wants mac and cheese. :)

J said...

Well, I can't offer much advice--just plenty of empathy. I am a believer that there is a solution for every predicament. I hope you find one for yours. In the meantime, here is a smile for you. : )

Marla said...

It is so hard when your child has eating issues because it is impossible to make someone eat. M goes through lots of food phases. For a while she would only eat things that were orange. She goes on food jags. It never fails that I think she will eat something more often, I buy it and she will never eat it again. Argh. Shopping for her food is beyond frustrating.

It is amazing that C has as much energy as he does considering how little he eats.

Phil Plasma said...

I used to say that my only food vice was coca-cola, but I have learned in the last six months or so that I should add chocolate-chip cookies to the list.

Oh well... my 6yo son is a great eater, he will eat all of his vegetables without any argument. My 3yo daughter has to be fed her vegetables first, otherwise she won't eat them. She only gets the rest of the food if she eats all of her vegetables, otherwise she doesn't eat them all.

I hope the move of C over to the new place allows him to recover as quickly as possible.

Bonnie D. said...

Hi Casdok, you've clearly touched on a serious subject here! I am personally no one to offer any good advice on feeding a child with feeding issues. Mine is 9, and wakes up in the morning asking for fast food, which he usually will get in one form or another at least once throughout the day. Otherwise, he only eats crap at home (ex. cheese sandwiches, frozen pizza, chips, pretzels, bacon). I guess after reading about C, I should be grateful he eats at all. It's so tough to think someone has such strong issues that it would make them not eat. I have no advice, I just wish you luck, and can say that I relate to your food issues.

leslie said...

Gee, I really don't know what to suggest except have you tried milk shakes of different flavours or "Boost" that they give geriatric patients that have lost their swallowing reflex? They are both high calorie and have good nutrients in them.

I'm like you in some ways - I do tend to go for comfort foods but sometimes I get so stressed out I feel nauseated and can't eat. Such is life for us all, I guess. \

Hope he acclimates okay with his new home. When will that be?

TraceyTreasure said...

Hi Casdok! I love, love, love the Eat Right 4 Your Type diets. They are based on the foods that you should eat for your blood type and since I've been eating right for my blood type, I've been healthy and I feel great. I don't remember the last time I was sick. (Knocks on wood!) :) Eating some highly beneficial food for his blood type might work? I have no idea but you could try it. Check to see if your library has a book. You don't have to read it, just check the charts for highly beneficial foods, neutral foods and the foods to avoid for your blood type. Hope this helps you!! Best of luck and hugs, T

AnneC said...

I agree with those who say you probably know best, as you know C best and obviously respect him (I can see it in your writing and it is very refreshing).

I'm also one who tends toward not eating enough, especially when stressed, and I am very picky as well. The things that have helped me most are (a) figuring out what healthy things I like in the first place, and (b) routines and schedules. I make a point of eating on a very regular schedule, because often the longer I go without eating, the "weirder" and less pleasant the idea of eating seems, which makes me apt to avoid it even more.

Suzy said...

Yep, there's a reason they call it "comfort" food.

Oh how I wish I was at the other end of the spectrum.

Always praying for the best for you and C.

Love,

Suzy

Club 166 said...

Nice to see you back around the (virtual) neighborhood!

Sorry I can't help with any suggestions for C. My problem is I have no food fads.

I'm basically on a seafood diet (I see food, I eat it).

Joe

geosaru said...

Hmm.. YES. THere was the time of Cup of Noodles, the era of Marie Callendars chicken fetuccini and chicken teriyaki microwaveables. Then last summer came the age of Chicken with Mushrooms. While fortunately I'm quite flexible with foods (as in, if my parents make hamburgers instead it's not going to distress me), but we definitely go through "phases" of food, which works out quite easily in our household, since we mostly shop food from the discount stores, and those things switch, go in and out of stock.

MarmiteToasty said...

I have 4 sons, in those I have 2 very gangly teenagers that at the moment are stick thin, but due to burning to many calories to what they can physically stuff in their mouths..... that in itself is a worry as I watch them get thinner and thinner.. extreme sports emthusiats (sp).......

I cant imagine what it must be like for you casdok when C doesnt and cant eat..... you are such an amazing woman.... love to you and C...

I didnt realise you was back, sorry, Ive been wrapped up in my own nonsense.....

x

Sandpiper (Lin) said...

It must be really perplexing and worrying for you. I take care of my 86 year old mother who thinks drinking one small bottle of Ensure and eating one slice of bread per day is enough to live on. She won't drink water and I get so worried about her. Sometimes I end up making three meals at suppertime and she still won't eat any of them. It wears me out. I wish I had an answer for you.

Debstar said...

Protein powder can be put in more than just milk. It goes nicely in yoghurt, porridge, cakes, scones and biscuits.

Thanks for dropping by Casdok. It's a lovely surprise when I get a visit from you.

little wanderer said...

how we take so many things for granted such as eating, it must sure be a worry for you with C.
wish I did have ideas for you
take care and love to you both x

frogpondsrock said...

Cheese and pasta are my comfort foods as well. I like to cook when I am stressed. I feel like making seafood marinara with spinach gnocchi.. Oh dear..

C has lovely hands.

cheers kim xxx

Lady in red said...

sometimes anxiety makes me comfort eat but other times I go off food completely hence I lost 4.5 stone during my divorce.

even now I still comfort eat but still don't eat proper meals very often.

My kids are all picky eaters but differently although I try to give them more or less the same food I have one who is just skin and bone but two who are overweight the eldest is average. Vi has helped me with some recipes maybe she could help you

Lis Garrett said...

My six-year-old son, who has sensory issues, has a very limited diet, as well. So much of what you posted about your son is also true for mine, and it is very frustrating. As of now, my son's main diet consists of cereal and Carnation Instant Breakfast. He won't even touch PBJ sandwiches anymore, unless it's first been toasted. I never know what he will like from one month to the next . . .

Mima said...

Casdok its really nice to see you back, and I wish I had some good advice for you, but I'm afraid that I can't help much! I also tend to comfort eat when something is worrying me, and since I have given up smoking I have become a polo addict which I'm fairly sure isn't doing me much good either!

I really hope that the transition goes as well as it possibly can, I will be thinking of you both.

The Dotterel said...

My weakness is red wine (and not knowing when to stop) but then, I'm sure it counts as one of my fine-a-day. Charlie's just exploring all the tastes and textures of his first feeds at the moment (with almost all his senses) and it's still a novelty. He even had some broccoli today. Having said that, we are having to take him down to London later on this week to have him thoroughly allergy tested (due to his eczema). It might be something worth considering.

Paddy Ebeneezer said...

I don't really know what to say but wanted to leave a little message to say thank you for stopping by and saying hello on paddy's page. Hiding behind my cat and writing about trivial cat related incidents keeps me sane, I've been amazed in the last few days to discover that so many people out there share so much, it really has got me thinking. Thank you.
My eating fads by the way tend to be chocolate, common for a lot of women, mashed potato, real comfort food and I used to crave custdard as a child. Wishing you all the luck.

Paddy's mum

Get Off My Lawn! said...

Just catching up. Food allergies on top of all that would be too much. Better to not know? My daughter only likes to eat meat. She prefers it to candy. I'm trying to teach her about scurvy but so far, short of forced feeding, she's not getting many veggies.

Rhonda said...

I'm so with you on comfort eating and cheese and pasta.
The two can be dangerous if left un checked. I'm trying to not eat when I'm not hungry.
very hard indeed.

I wish I had some really great tid bits to help you.

blogthatmama said...

Came via purple coo. It's taken me ages to get to the bottom of these comments, never seen so many! My son is a terrible eater and always has been - the doctor said it is a lot to do with his personality and my choice was little by little, mouthful by mouthful, day by day or world war 3. He's better now but he hates trying new food. I eat everything except white chocolate and tarragon. Will be back...

Trixie said...

To 'hide' vegetables in pasta sauce, I puree an onion, carrot and courgette (peel courgette so no green) and my boys eat it up!

Kahless said...

Food is an odd one.
My love to C.
xx.

MamaGeek said...

Food allergies? Yikes. Chocolate ANYTHING is comfort food around here!

JUST A MOM said...

wouldn't it be great if he chose very good foods to gain weight between the others. Will he drink the shakes... oh never mind don't bother answering that one.. probley not you have been at this a long while. hang in there

captain corky said...

I had a crazy allergic reaction to something that wound up putting me in the hospital a couple of weeks. Still don't know what it was...

Good luck with the move and I hope you find something that C will like to eat soon.

lime said...

oh goodness, i can only imagine what a worry it must be to you trying to find something he will eat. i wish i had some good suggestions for you.

LceeL said...

Our Zachary, our Asbergers boy, is also painfully thin. And he has eating issues. He has an extremely limited menu that never expands. BUT. We have found a supplement he will ingest, called Ensure. It's a liquid, like a shake. It's sweet and tasty and it's the only thing we've been able to add to his diet that we know will give him nutrients his body otherwise lacks.

Of course, Zach is in a different place on the 'spectrum'. He is communicative and responsive. He doesn't 'stim'. We are able to reason with him and get responses from him. So getting him onto Ensure was relatively easy. I hope you can find something similar for C. God I hope so.

Seen This Scene That said...

Sorry to hear about your stress and C's weight. I have three kids who are fussy eaters so I know it must be really frustrating for you. I wish you all the best!

Rosie said...

welcome back and courage for the changes winging their way towards you. I will sing a song for C in my heartxx

DunnRight said...

I love your blog, it is very refreshing. Something so great to read and learn about.
My comfort foods range from pickeled sausages to cadberry eggs.

Trish (wheresthebox) said...

I definitely use food as comfort and it is the hardest area to keep control of when I am overwhelmed. Please do whatever you can to take care of yourself during this stressful time.

I can only imagine how difficult this time is for both of you - hold on to the good feelings you have about the place he is going to be living and trust that it will be okay. And if it isn't, you'll deal with it then. :)

Michelle (The Beartwinsmom) said...

I think if you cut me open, I might bleed chocolate. ;-)

Seriously, though, I do tend to go for carbs a lot when I am stressed. Gee, then I must be stressed all the time.

My son w/ autism had/still has food issues with food textures and colours. It is frustrating sometimes. Last night we had butternut squash, and he threw up after he tried a bite. Sigh. I know where you're coming from, C!

Cyndi said...

Will he eat peanut butter? I recently discovered that Matthew LOVES it and now I hide some of his vitamin supplements in it!

Green Girl in Wisconsin said...

That is a cycle that just can't quit, isn't it? I've learned to take the occasional pickiness in stride here, thanking God that peanut butter sandwiches and oatmeal is on the healthy side of the spectrum!

Jocelyn said...

Visiting your blog is always incredibly humbling (and I mean that in the best of ways, as a huge compliment). Just reading your post and the comments it's elicited has left me breathless and in need of a good think. You have given me perspective here.

A Bishops Wife said...

I had never thought about this before as my Junior is "chunky". However, if he could not get the food he preffers (very few)he would just not eat. That scares me.

The link to "NTs are weird" is good--thanks.

Bonnie D. said...

Thanks for sharing the link about Josh, he is truly an awesome kid, and I look forward to hearing about his journey. I would never have seen that if you hadn't linked me. Thanks.

Nea said...

Thanks Caz for the links to Josh and NTs are weird, together with your post they have given me food for thought. Sorry, no tips, but reaching 6 ft and "energy to stim" you must be doing a good job. I'd stick to what works, maybe you can increase the amounts a little bit at a time?

Shari/"Whiger" said...

My food fad? I guess you can call it "emotional eating." When I am stressed, I overeat. Hate that.

You are such a strong person. I've always believed that God picks certain parents to have special children.

Hammer said...

My Aunts son started starving himself at 7 because of his parents impending divorce. He didn't eat normally again until age 17

No one could get him to eat short of a feeding tube. To this day he has problems because of it.

I hope you find some solution.

kristi said...

I know it is hard for you to see your son so thin. TC eats a few things...not much. I was surprised he liked guacamole the last time I bought it.

I eat when I am stressed. Mostly chocolate.

Pavel said...

I eat cheese pringles myself when I'm nervous or upset. (smile)

My boy loves spicy rahmen noodles and would have one after every meal if I'd let him. Since he loves it so much, I use it to entice him to try other things because I'll give him the soup.

vivavavoom said...

casdok...maybe don't print this...that is your choice because I hate giving out my medical advice over the internet....due to regulations and all. But is there any way of getting C to take supplements? And/or get him tested for a zinc deficiency. It can be done by taste test. Zinc def is VERY common in cognitive delays of all kinds as well as those with a hx of eating problems. they have lost the taste or desire for food. And I treat adults with it who have a hx of depression among other things. Not sure if that is wishful thinking, since I do not know how okay C is with taking things. They also make great probiotics, pharmaceutical grade to help with the intestinal lining. those can be put in a drink if capsules are not possible. I would recommend one with over 16 billion live cells for him, and even better there is a company that makes one with 2 bacteria they have found help with brain issues, etc. Those are not easily bought in stores. If you have a health practitioner friend over there, he/she could get them for you. just let me know.

Working mum said...

Hoping C's move goes well and that he (and you) settle quickly into your new lives.

My fad - hiding (and eating) chocolate under my bed when stressed. Last time was Toblerone One by Ones when our boiler packed up in January. Luckily haven't been so stressed since!

La La said...

I have been thinking about you a lot. I hope that C is eating a bit more now and that the move and transition went well.

Samantha said...

I comfort eat as well, I've been doing nothing but since losing m job. I'm looking for a way to break the cycle, but I just can't stop!

Randy said...

I'd echo the recommendation to try weight-gain powder, if he'll drink it in his milk.

My kids go through phases where they are wildly in love with one or two particular foods, then drop that food completely from their menus. My oldest went through a lengthy instant mashed potato phase; my youngest went through a phase where he had to dip everything in something or other. Now both of them are obsessed with McDonald's french fries (more than most American kids are, I mean).

As for me, I was disappointed a few minutes ago when I saw that the snack shop upstairs is closed today. I've been getting fried lemon pies up there 3-4 times a week. Before that, it was vanilla cream cookies.

The Muse said...

I have binge times myself...It would be better for you, if C was more like you.

Do take care and good luck with the move.

Palm Springs Savant said...

that is a challenge! When I was a kid for some reason all I would ask for was hot dogs. never anything else. then all of a sudden I switched to peanut butter and jam sandwiches and swore off hot dogs! strange what makes us do these things.

Patti said...

I eat when I'm stressed too. Pasta is a wonderful comfort food. And chocolate, and chips.

Sorry to read of C's eating problems. It must be frightening that he is so thin.

Good to see you back blogging. ;-)

DJ Kirkby said...

Food itself is my fad. I too will eat the same thing for weeks on end until I tire of it. Sometime I never eat it ever again after that but usually, once I have worked that obsession out then I revert to eating that particular dish on a normal frequency, y'ano, like occasionaly.

Chris H said...

C is living proof that no one will starve to death (exluding anorexics) deliberatly! He obviously eats just enough to grow! Hey thank you so much for your lovely comment this past week, Stew and I really appreciated it. HUGS to you.

Maddy said...

I'd send you a catering carton of Goldfish crackers, the only consistent element of food for my littlest one, but it's just as likely to turn 'off' without warning.
Best wishes

nitebyrd said...

Is color or texture a factor?

Casdok said...

Yes definetly.

Stinking Billy said...

cas, food is fattening. All food is fattening. Drink, OTOH, is slimming. End of story.

Motherhood for Dummies said...

My austistic nephew always loved those snacks in a portable tin... he could carry them around with himself and then could eat when he wanted. Plus i think he liked taking the lid off himself (when he could)

CrazyCath said...

I cannot imagine how stressful this must be, and I have no useful tips for you. Any I would think of have been mentioned.

I just want you to know that I think of you both and I still (constantly) admire your strength, determination and most of all the love you have for your son. We all love our children, but yours is tested daily, and you win hands down daily.

My utter and complete respect.

Hope things improve.

CrazyCath said...

PS - You know you are loved and respected across Blogland - look at how many of us come to see you (both).

E said...

Does he eat ice cream? Milk shakes can be made with raw eggs. It just makes them fluffy and gives him some calories besides. They are completely tasteless.
You always amaze me. You are a hero mom....

Angela said...

I guess you just have to be happy that he is eating at all.
It is hard not to worry about the food thing.

whimsical brainpan said...

Just a chronic chocolate addiction...

Anonymous said...

Chicken nuggets, pizza, french fries, chips, and applesauce is all our little guy will eat. He has a lot of energy always pacing and going from room to room. I suppose he gets enough energy from food. Always a worry!!

Love your blog!
spectrumspectacle.blogspot.com

Elissa said...

I used to be a non-eater during times of anxiety and stress (and would lose weight as a result)... now I tend to reach for the comfort food - chocolate being my first choice (not great for the hips though!)

Kelley said...

I have a similar but opposite problem. Boo will only eat a small range of foods but has no idea how to stop. He will go all day without eating and then fixate on something and eat and eat and eat.
And the result is he is obese. Grossly obese.

And it breaks my heart.

menopausaloldbag (MOB) said...

I have an award for you at my place.

CAMILLA said...

My children when small would be very fussy eaters, loathed veg and meat too, and they will never forgive me for letting them eat Mackerel to this day.

I tend to eat lots of choc when stressed Casdok, does 'C' like eggs, so many forms of menu's to go with eggs, and of course they are full of vitamins.

xx

Casdok said...

No he dosnt like eggs or chocolate for that matter!

Merlin's Wizard said...

Not being a mother myself im afraid i cant offer any help in the eating department. i do however think that it must be very painful for you to watch him not eating and i hope he gets better soon. Good luck with the food.

Take Care both of you

MW
xxx

LceeL said...

You're here, I see - but is all o.k.? Because I don't see you anywhere else, lately, and I miss you.

citizen of the world said...

I always look forward to your posts.

My older son was a typical eater as a toddler, so we would belnd broccoli inot his waffle batter (broccowaffles) to get veggoes in him. Thankfully, as a teen, he eats a pretty healthy diet. My younger son has always had a sphisticated palate and even at 2 wold eat kalamata olives, brie and that sort of thing. He's also been a coffee drinker since early on.

Me, my food weirdnesses are mostly textural. No cooked mushrooms, for instance. And I can't bear cilantro. But my weakness is chocolate.

Dad Stuff said...

I don't have too much advice about eating either.
N1S likes to eat one food at a time on his plate. He doesn't prefer to mix his foods. So hotdishes and salads are a struggle.
Good Luck with the move.

Lisa~The Stimming Spot said...

I just dont know how you can handle over 100 posts. It truly is amazing how many people look to you for wisdom. I think it is because you are amazing with your son and blogging. I wanted to comment about the eating thing. My son is nonverbal 5 year old. He has trouble with food as well. He is so thin. I can count on one hand all the foods he chooses to eat. It is frustraiting as a mom at times. He also goes through food phases as well and sometimes just doesnt eat. I see those that do the gf/cf diet. Im sure it would work but I cannot try it. Simply because my son needs to eat what he can. The one food I did take away is milk simply because I notice the sounds coming from his belly and the end results to it lol. Take care:)

Baking a wish said...

Blessings to you and to C. As being a mother of a son that is also autistic, in the spectrum, I know what you are doing is hard. I totally lose it when I realize that I don't have the magic wand to make my son *Better* for his own safety. It is heart breaking. Yet, as mothers we sit and ponder, we wonder how we can make life better for our kids (ours being sons). It is the hardest thing that I have had to do, to give my son up, temporarily to get him the help he so needs and so DESERVES! I am such a better person because of him. Such a sweet blessing. Keep strong and keep advocating! Blessings to you both and your family as well.

lastcrazyhorn said...

I nearly stop eating when I'm stressed out. I find that canned peaches are good at that point, because I don't have to chew them to get them down.

When I was younger, there was a period of my life where I literally lived off of PB & Js, apples and baked potatoes. No joke.

When I finally discovered veggies, I discovered that I liked them steamed, with just a teensy bitty bit of salt and pepper - but it's better if you can do it without telling me about it. lol

lonestar818 said...

Hugs to you and your son!

My 3-yr-old has eating issues, he'll go days and hardly eat a thing (and he'll be hungry and crying, but refuse everything we offer him), and then he'll eat everything in sight for a day or so after that. I think he has a hard time recognizing his body's signals to know when he needs to eat. He's also very picky about what he will eat, and his list of "LB-approved foods" seems to change pretty frequently although in general he likes crunchy stuff and hates mushy stuff. I don't have any tips either (although I'm sure we haven't tried as many things yet as you probably have) but am going to check out the post at NT's are weird that you referred to. Thanks

Lou said...

Thanks for stopping by my blog. Your blog is beautiful & inspiring.
Our son's have very different situations, but we are both mother's. And mother's never stop fighting for their sons.
God Bless.

c0smic1 said...

We have one who will eat pretty much anything and the other who has gone from eating everything to just a few things. We are sneaking gluten free in as much as possible for the 4 year old little man and he amazingly is growing and gaining weight. However some days he barely eats a bite. Its worrisome but we just try again the next day. Two of his favorites are Triangles (pancakes cut into triangles) and Chicken (breaded wings from Schwans a US based frozen food company) We have tried other sorts of breaded chicken but he refuses it and spits it out. I believe his issues are deeply sensory and texture based. He has begun medication to calm him simply because his self injuring and injuring of others has reached the dangerous zone. I was heart wrenched today having to give him his first pill (crushed and hidden in his favorite drink) and already we have had 2 side effects.
Bless you and your wonderful C. I just found your site today so forgive my late responses.