Friday, 1 February 2008

One of those weeks!

Have you had one of those weeks when everything has just gone
pear shaped?

I just have, and yes thats not even a pear.
Poor C found the helmet fitting much to stressful (i have a cut eyebrow to prove it, (it wasnt deliberate i just got in the way whilst trying to calm him) and why i havent mentioned it as i also found it very destressing ) it breaks my heart to put him through things like this, and i wouldnt unless i thought it necassary. We have to go back again in 2 weeks for another fitting, which will be harder as he will know whats happening next time.

Its going to look like this, (in a lovely NHS green colour) but with extra thick padding at the front, as they saw for themselves what he is capable of. Also his forhead looked worse than usual as only a few days before he had broken some bathroom tiles.

The rest of my week hasnt been much better and the week isnt quite over yet.

Some good news this week however for carers in the UK.

So how has your week been?!

51 comments:

the mother of this lot said...

Thinking of you both.
Love
Jackie

katy said...

sorry you and C have had a distressing week Casdok.
it is a great leap forward for carers, and about time too!
hope the weekend brings you some pleasure x

Chris H said...

Bummer about the horror week, at least you get a breather before his next fitting! Green.. lovely... if ya like green. I hope C does, and I really hope the 'helmet' helps protect his head.

DJ Kirkby said...

It seems unfair that there is nothing that can be given to C beforehand to relax him and calm him down! Other NHS patients that become distressed are offered Valium or other forms of sedative/hypnotics which can be taken over a period of a few days ot build it up in their system before the appointment.

motherx said...

Sorry that sounds awful. Its no consulation but I do know how you feel. Im so stressed about Ws hospital appt, I am certain I will cancel it. Poor C, it must be very frustrating for him. I do feel for you, really, its such hard work and unless you are going through it you cant possibly understand. I really hope you have a better week next week. Cant believe its only a few weeks until half term already! xxxx

Casdok said...

Dj, we have tried things like that in the past, but he is so weary of medications that he just stops eating and drinking.

Mima said...

Casdok, sorry that you are having such a hard time, and I know what you mean about finding it hard to write about things sometimes, they need to be mulled over, and then blogged once the time has come right. I hope that it has helped you to write about it as much as it helps me.

I have my fingers crossed for you for your next appointment, I can't imagine how hard it must be for you to put him through something that you know he hates so much. I hope though that the staff are being supportive to you as it happens.

Elissa - Managing Autism said...

LOL and hugs xx

(and here's hoping for all of us that there are no pears next week!)

Mrs. C said...

I'm ruefully thinking you need to secure your own helmet before strapping his on...

I'm sorry everyone has to go through this!!

BenefitScroungingScum said...

Funnily enough, I've been having 'one of those weeks' too. So glad it's friday!
I'm so sorry to hear C's helmet fitting was so distressing for both of you. I'm sure you've already tried everything like this, but as C loves watching his lights so much, perhaps taking his favourite (or a duplicate so as not to upset at home) with you to be turned on in the hospital might help a little.
Thinking of you both. Love BG x x x

Jen said...

It hasn't been as bad as yours, but not great. My son attacked my daughter for the first time in years which put her into an emotional breakdown, spent a lot of the week at a cardiologist finding out about a heart problem we didn't know our other autistic daughter had, and today's our 3rd snow day!

I'm so sorry that you and C had such a horrible time...when we were having our ultrasound yesterday I just couldn't stop thinking about how horrendous it would have been with my son instead of my daughter, only because she's got a little bit better understanding.

I hope that there's some way that the next fitting will work- we'll be thinking of you.

MMC said...

casdock, I can only offer my motto: This too shall pass. Repeated ad nauseum. But it sucks, for both of you. And I'm sorry. Hang in there.

laughingwolf said...

sorry things did not go well with the fitting and it has to be repeated :(

buffalodickdy said...

Hope thing go a little better soon, sounds like you had a tough week...

Phil Plasma said...

This week has been a little bit tiring with my wife doing extra hours at her job, a contractor rebuilding two rooms in my house and my own job getting unusually busy. Add to that the care of the two kids and the upkeep of the rest of the house...well.. a normal week after all.

moooooog35 said...

My week has been okay.

My football team is in the Superbowl Sunday night...

...and I was able to poo on newly cleaned toilets at work (blue water!) THREE times this week!

(I'm not counting the one time I had to do an "afternooner' and someone had previously clogged it...forcing me to flee with my very life)

Have a good weekend.

nitebyrd said...

Sorry you had a rotten week, Casdok. C must be very frustrated at this, as you must be. It's so hard to do what you know you must for your child when they don't think it's good for them.

I'll send good thoughts for a better upcoming week.

lime said...

poor c and poor you. wish i could offer you the chance to come along on the overnight getaway i am taking tonite. it sounds like you need it even more than i do.

Crystal Jigsaw said...

You know I'm thinking of you.

Crystal xx

Nancy said...

=( I'm sorry for the blech week.

I hope the next is great and offsets this past one.

Punkys Dilemma said...

Casdok, I'm so very sorry for all the heartache both you and your son have to go through. I know these words are of no help, but you are a wonderful mother. Disability is so very hard to cope with, no matter to what degree.

I hope the weekend will bring a little bit of sunshine into you and your son's heart.

Maddy said...

Sounds like a grim week all round dearie. I imagine you're both going to have a devil of a job with the chin strap.
Best wishes

Doc said...

That sounds like a tough time... hopefully it will go beter next time.

Ashley's Mom said...

Here's hoping the weekend is better. If not, drink adult beverages and focus on that third picture from your 'pants' post ;)

Mary P Jones (MPJ) said...

Casdok, that's so hard! I hate having to do things like that -- things that really stress my son, but that I know are necessary for his health. Take care. Hope next week is better.

We have all been sick off and on with various viruses for the past few weeks, so I'm hoping next week is better for us too. :)

Akelamalu said...

It must be so difficult to put your son through these things, even though they are necessary. I feel for you. x

Helen said...

I was sorry to read that! You must be a real tough fighter, too (as C is) to manage all of this.
Hopefully you'll have some more quiet times ahead of you!

Tom Foolery (TF) said...

Sorry to hear about your week. Mine has been a mixed bag, just glad it's Friday now drinking my second glass of red wine.... TFx

Cynnie said...

he will get use to the helmet eventually..
aww poor darlin,
I've seen behaviours that were just horrific..
One boy chewed his lips . bloddy and mangled his lips!
what on earth do you do with that?

how did you know I use to work with autistic kids ?
is that why you came by my blog?

Ellee Seymour said...

What an interesting blog, I shall link up to you. And yes, this week has been good, lots of new options on the horizon, different challenges.
Have a great weekend.

mommy~dearest said...

That's one of the things I hate about being a parent...putting my kids in situations that I know are stressful and frightening, and me having to be the one who's making them go through it.

*love to you both*

dawn said...

You poor thing, it's gotta be so hard but the helmet is a good thing and necessary. If I could I would send you away on a spa retreat right now but all I can do is send my well wishes. try to have a good weekend

Omega Mum said...

I will hope for a better week for you. But you did it - you had the fitting and it has to be the right thing to do, even though it can't be explained to C.

Joy said...

So sorry he had to go through that, and you did too :( It sounds like an exhausting day.

Eileen said...

Sorry about your week. The helmet session sounded very, very stressful. It is so very hard, as a parent, to watch our children be afraid and not be able to sooth them.
I definately had weeks like that, the worse probably being when my oldest what in a psychiatric hospital. Not a week I ever want to reapeat.

I hope this week is better.
XOXOX

misha_k said...

Hugs, hugs and more hugs. We've both had stressful weeks. I completely understand. More hugs to you and to C

Patti said...

Sorry to read you've had such a stressful go of it.

Hope you have a relaxing weekend ~
take care of yourself

david mcmahon said...

Dear Casdok,

Much love to C.

Much love to you.

And much love to all the carers around the world.

(I just realised you're not on my blogroll, so I've taken the liberty of adding you. Hope that's OK with you.)

Julie at Virtual Voyager said...

Casdok - Just to say I'm thinking of you. My week - Had a set back with compressed nerves (back and leg injury due to a fall last summer) so have spent another week off my feet; just starting to improve.

The blogging has been a stimulus I wouldn't otherwise have had.
I still have a copy of the book by Stephen Wiltshire (?)the young autistic artist somewhere.

Cait O'Connor said...

I am sorry you have had such a lousy week Casdok. Could something be given to your son to make him feel more relaxed before your next appointment?

Angela said...

I know it must be hard for you to see C so upset. I think green will be grand.
Well maybe they will make it better now since they understand a bit more.

deb said...

Sounds like you had a crappy week. I like the expression, pear shaped.

Do the doctors know to what extent C's self abuse has hurt him? Does he have brain damage from it? I can't imagine how hard it must be to have to deal with it and how much you must worry about him.

Marla said...

Oh, my. I imagine being sized for a helmet would be stressful for C. Sounds like you and I are both having a rough week.

Dad Stuff said...

Sorry about your week Casdok. I'm sure it is terribly draining. I know how it feels to put a child through something distressing for his own good.
It seems C likes to wear his baseball cap. Maybe you can relate his cap to his helmet in some gradual way.
Keep up the great work.

Tanya Brown said...

Do you follow the comic strip Clear Blue Water? Now and then when I see it, it reminds me of some of your anecdotes.

Here's today's strip:
http://news.yahoo.com/comics/uclickcomics/cx_cbw_uc/latest

Casdok said...

Cait,
this has been tried in the past and he just stops eating and drinking.
Deb,
yes everyone is aware that Cs headbanging is lifethreatening and the extent of damage that he has caused.
Dad stuff,
wearing a cap has been part of the biuld up to wearing a helmet.
Tanya,
thanks, yes i do follow that comic strip! :)

Ivy said...

But how will you manage to put on and off the helmet once it has been fitted if he takes to it so badly. Poor c probably scared to bits and you going through all this stress. Thinking of you
Love IvyXX

kristina said...

Charlie has a shiner on his forehead --- had a fabulous day at school on Thursday and in the last half hour, bonk on the desk.

Take care of yourself and C-----

Palm Springs Savant said...

gosh my week doesn't quite seem so stressful now.I hope things are better next week.

KC's Blog said...

Hugs to you and C :) Hope you are guys are having a good weekend.
Hugs friends :)

WesterWitch/Headmistress said...

Hugs to you both . . .