Tuesday, 12 February 2008

Helmet fitting - stage 2

When i am stressed my jaw and neck aches. Over the last few days it has been really bad so I have been wandering around with a cork in my mouth! A friend of mine told me about this, and it does seem to help a bit. But the bottle is rather heavy!

Today I am meeting C and his staff at the hospital for another helmet fitting with the orthotist. From their measurements from last time (cant quite see how they got any!) a prototype will have been made, if it fits, it then goes back and be covered in leather.
C doesn’t like his head being touched. Hair washing, hair cutting etc is not an easy task. Its taken years to get C used to having things on his head. We started with a ski band, then a woolly hat, and on to a baseball cap. All of which he takes off when he bangs his head (which is very often). And recently we have been trying with a rugby helmet bought off the peg - he is not happy with it. It doesn’t fit very well, and covers his ears, as you know he likes his fingers in his ears all the time, so its getting covered in food (and other things) . Since wearing this (when you can get it on) he has been hitting himself more on his chest and back, Which are now permanently bruised. But for me at least his head is having some rest, and hopefully able to heal a bit as its not looking good.
Hopefully this new helmet as it is custom made for him will be more comfortable and he will have easy access to his ears.

So another traumatic hospital visit, but this time I am bringing C home early for half term. Last time I had to leave him and he so obviously wanted to come with me. :(

Well had better go and catch my train, and must remember to take the cork out of my mouth!

Oh have you seen Clear Blue Water by Karen Montague-Reyes, which sometimes features a young autistic boy who headbangs!

72 comments:

graceunderautism said...

Hope things go smoothly....we can hope right? Interesting about the cork and tension release.

Tanya Brown said...

I saw that strip the other day and thought of you. I also enjoyed the one with them in church and people commenting nastily on Seth's helmet.

She's done a great job of depicting the reality of loving, coping with situations most people can't imagine, and having one's norms change.

It sounds as though C's helmet fitting may be a bit of a trial, but I'm going to keep a good thought for you both that it'll go as well as possible. Even though he hates the whole process, it's the right thing to do.

Chris H said...

I sure hope the helmet is a good fit and can be ready for C soon. The cork, just 'in your mouth' or gripped between the teeth, or half in and half out? I get sore jaw/neck too.... so the cork idea appeals (if it worked).

Vi said...

Have a safe journey, and I'm glad you are getting the chance to spend a little bit more time with C over the break.

motherx said...

Very Best of Luck! I will be thinking of you both and hoping it goes ok. Those visits are never easy, take care.x

Babaloo said...

Hope all goes well today with the fitting! And that cork is an interesting idea. I guess if you dip it in wine first it will have a doubly calming effect. ;-)

PI said...

Two things occur to me: does C stick his fingers in his ears to cut out noise and would he tolerate ear plugs
so they could use the helmet?
Secondly when I am stressed I clench my jaw when asleep, and often get a badly bitten tongue. My dentist found the answer and I had a tooth shield made which I wear at night when stressed, an it works. Just a thought.

Elissa - Managing Autism said...

We'll be thinking of you... hugs to you both, and hoping things go as well as possible. xx

Nancy said...

Oh I hope the helmet fits and doesn't need to have adjustments. Sending good thoughts your way.

The cork? If it's not working fast enough, remove from bottle and consume contents.

Jen said...

Good luck today!

BenefitScroungingScum said...

Good luck Cas, I'll be thinking of you and hope it's not too traumatic for either you or C. Hugs BG x

Mid-lifer said...

Hi,

See you don't show awards on your blog, but I've nominated one for you nevertheless because I think your blog is indeed excellent!

Randy said...

Good luck with that. My head-banger has stopped banging; I'm keeping my fingers crossed.

That strip looks good. I don't know whether we get it on this side of the Atlantic. It is funny how our norms completely change and things like head-banging and biting just seem perfectly normal. Once in the car, I was blathering to DW about how she and I both grew up in emotionally repressive homes and were wary of showing our emotions. Just then, my oldest son smacked me in the back of the head, and hard, because I passed an exit he wanted to go on. I just laughed, "well, at least our kids aren't like that."

Mrs. C said...

Do you get the headache only on one side of your head and grind your teeth? That's TMJ and they actually have special mouthguard things ($$) for that. I have one and it's great but if you sneeze you bite a bit of your cheek so it's no good when you have a cold.

Poor C - I hope he comes to like the helmet after all. (hugs) back at ya!

Elise said...

I can't say I've ever tried the cork in the mouth technique.

I don't have any experience with autism at all. You're a very strong person to understand and cope with it.

xx

buffalodickdy said...

Hope all goes well- Grinding or clenching teeth in your sleep is common. They do make mouthpieces that would work better than a cork! In a America, to tell someone to shut up might be said "Put a cork in it". Someone would look at you, and think finally someone had to shut you up!

Ashley's Mom said...

My thoughts are with you and C. I'm heading down that same path - helmet fitting - and to say it's not going well is a whale of an understatement.

Angela said...

I love that comic strip...isn't it the truth? You CAN get used to anything. :) Good luck at his fitting...hope he gets a helmet that will meet his emotional, as well as, physical needs.

Maddy said...

Mine [one] now likes to have his head covered with a hate as some kind of protection but he has to wear a fleece ski hat underneath the hat to protect his head [and cover his ears, which helps reduce 'noise' too]

Hope you have better luck with this one. Is there any kind of material that he really does like the feel of?

Until recently my teeth didn't join anywhere. Now they do. Now I grind them together, so I like the cork idea.....maybe a bottle of Blossom Hill wine is the answer [two blocks south from here!]
Cheers

Mrs. Fox said...

Here's hoping things go as well as they can.

Slow Panic said...

best of luck with the fitting today. i hope all goes well for both you and C.

lime said...

oh dear. must be so hard to go through those fittings knowing you are trying to help and yet have him be so distressed about it. i hope it can go a little more smoothly this time.

Phil Plasma said...

Good luck with this, I hope the new helmet helps.

Suzanne said...

My thoughts are with you. Hoping the new helmet works out.

mumkeepingsane said...

That's a great comic strip. I really hope the fitting goes as well as it possibly can.

Angie said...

Hope all goes well for C! I trap tension in the same places and my "furrowed brow". I think my yoga instructor has given up on me! I've certainly got enough corks laying around. Sometimes a glass of wine works wonders when yoga class doesn't cut it.

Mima said...

Oh, I will be thinking about you as you head off for the fitting, all the best of luck. I hope that things go as well as they possibly can, and that both you and C come out of it unscathed.

the mother of this lot said...

Hope everything goes better this time. I bet C's looking forward to an extra few days with you!

Preposterous Ponderings said...

Oh my! Good luck at the fitting!

Annieye said...

I hope the helmet fitting went well and you remembered to remove the cork!

My friend used to have a habit of putting her rubber finger (you know, those things you wear on your fingers to count money) on her forehead, held on by suction so she didn't lose it. I suppose it was inevitable that, one day, she'd walk round town at lunchtime with it still there!

katy said...

Hope C was ok with the fitting x
hope you had the cork in your mouth to help you! but please leave the bottle of wine behind!
and readers digest now i feel old!!!

Niksmom said...

Hope the fitting went well. You know, if you fit a little straw through the cork that bottle will get lighter! ;-)

Lane said...

Hope it goes well for C and you.
x

whimsicalnbrainpan said...

I hope C takes to the helmet ok.

Interesting bit about the cork. How do you keep from biting through it though?

Kahless said...

Hope eveything goes well.
xx.

Omega Mum said...

I can only echo all those good luck thoughts and say am thinking of you. Glad to hear his head's healing a little.

MamaGeek said...

I hope everything goes well. And I also hope a little wine is on the other end of that cork. :)

Jim said...

Fittings. I have had some fittings like ear molds. Now helmet must be fitted properly and that's time consuming. I hope this will be smooth for you. I hoped your train ride was enjoyable.

Jim

Scarred4life said...

~hug~
Hope everything went as smoothly as possible for you both!
xxx

dykewife said...

i hope everything goes better than you dread.

i love clear blue water. it's one of my fav comics. i'm glad that i was able to direct you to it.

Marla said...

Hugs. My thoughts and prayers are with you and C. Hopefully he will adjust to it. I imagine it would take a lot of getting used to. Snow hats have always bothered me after just a short time wearing them.

Jade said...

I actually thought about you and C and the helmet situation today before I even read this post. Wonder why...? Hmm...Maybe I'm psychic ;-)

Hope this new helmet helps your situation. And hope even more for the both of you that it all goes smoothly.

Best of luck to you both!

J said...

Best wishes to you and C. Sounds like you clench your teeth a lot when stressed. Haven't heard of the cork idea nor the comic strip for that matter. Take care--jml.

Angela said...

Hope the trip goes well
I am sure it has to be hard for the both of you

Honeysuckle said...

Hope the fitting goes (went?) well. We too dread hospital appointments that involve anything other than answering a few questions...

DJ Kirkby said...

Good luck. The train ride home afterwards will be a lovely treat for C.

But Why? said...

Hope the fitting went well.

Loved the comic strip!

FXSmom said...

love the comic :)

motherx said...

Hope it all went ok.

Jennie said...

Thinking of you both, I hope the hospital visit goes okay.
I hunch my shoulders when I get stressed. :/
(hugs)
Jennie

Rhonda said...

when I'm stressed my jaw and mouth and ear aches.
I've always thought I was weird now I see there's two of us! (maybe more)

Stinking Billy said...

Just called by to show my respects. I keep bragging about being a minimalist, but love your busy site. And 50 comments - wow!

titration said...

Hee hee, you don't really leave the botton on the cork right. :)

I echo all the other people. Yes good luck today. And maybe you deserve an extra pat on the back today yourself!

Maddy said...

Hmm no update / part 3 = I guess half term must be going like a blast!
Cheers

p.s. any idea what going on with all those new wiggly bit at the bottom of the comments box? I'd swear they weren't there yesterday. Did we vote on this or something?

Doc said...

I sure hope this fitting goes better for both of you. I know it must be frustrating.

nitebyrd said...

Hoping the fitting will go better than you expect.

John-Michael said...

My admiration of you continues to soar ... as my heart aches for you both. All that is good from across 'the Pond.'

deb said...

Hope things go well and enjoy your time with him at home.

Crystal Jigsaw said...

If I was able to give you a hug I would - consider it done from a distance.

C x

QUASAR9 said...

lol casdok,
that's certainly one way to open a wine bottle - I can just imagine you with a cork in your mouth

Patti said...

I hope all went well today for you and C at the helmet fitting.

You're a strong woman. Truly admirable.

kristi said...

TC hates haircuts and washing his hair too!

I hope it goes well for you.

LAA and Family said...

More good thoughts coming your way. I hope everything is going okay with the helmet fitting. At least you get to bring C home with you afterwards!

I used to love to ride the train when I lived over there. There's nothing like it over here. We lived up the hill from the Chorleywood station, on the Metropolitan line of The London Underground. It's also a British Rail station.

Julie at Virtual Voyage said...

Appreciate all that you are giving to others by your blogging in the midst of all this. Take care.

aspiemom said...

I couldn't remember the name of that strip--thanks for reminding me.

Ronn is not a head banger--he's a jumper. He loves that trampoline!

Niksmom said...

Cas, there's an award waiting for you at my place:

http://maternal-instincts.blogspot.com/2008/02/love-is-in-air.html

xo,
Niksmom

TheBirdman33 said...

I hope all went well and things are moving along with his own helmet.

kristina said...

I admire your unending humor and wit and perseverance----thinking of C and you.

MMC said...

I know this is a few days late but I hope it all went well. I can so identify, the Blue Jay use to do a lot of head banging when she was little. And if she was in the (carpeted) living room, she would go out into the kitchen to do it on the harder floor there. It was really bad around times she had clusters of seizures but they did find one way to stop it in the hosptial. We kept her in a crib for as long as possible when she was hosptitalized for seizures because they had "tops" on them so she couldn't crawl out. One time she was banging her head so hard on the rails that they put a helmet on her. She stopped banging her head. So after a while they took if off. She started again. I gues it must have taken all the 'fun' out of it with the helmet on.

So now I am reminded how lucky we are that she no longer does this. Sure, she's moved on to other things when she is upset but still ...

All the best, my dear.

daryl e said...

I hope the helmet helps ... you are clearly a good and enterprising mom!

andrea said...

As a newbie to autism and autistic spectrum disorders (loved 'The Curious Incident...') but not to brain disorders (son with ADHD), and a student of animal behaviour, particularly dogs, I was thrilled when a friend sent me 'Animals in Translation' last week. Just thought I'd pop in with that... :)

Emily, as some know me said...

A cork, eh? That gives new meaning to "put a cork in it."

I hope the helmet is more comfortable. I really sympathize with C because I cannot STAND to have anything on my head. No hats, no headbands, barrettes, clips, ponytail holders, or even crowns. ;) I can't even have long hair, I dislike the feeling of weight or anything on my head so much.