Monday, 28 January 2008

Light sensitivity


Light sensitivity can cause many people problems.

Photosensitive epilepsy is the name given to epilepsy in which all, or almost all, seizures are provoked by flashing or flickering light, or some shapes or patterns. Both natural and artificial light may trigger seizures. Many people think that everybody with epilepsy is photosensitive, but in fact only five in every hundred people with epilepsy are.
SAD (Seasonal Affective Disorder) is a type of winter depression that affects an estimated half a million people every winter.
It is caused by a biochemical imbalance in the hypothalamus due to the shortening of daylight hours and the lack of sunlight in winter.
For many people SAD is a serious illness.


Migraine sufferers may experience hypersensitivity to light and sound.
Light sensory overload in autism is well documented
Three possible effects
• Direct hypersensitivity to light
• Over-stimulation from interplay of light in space
• Effect of changes in lit environment on contextual understanding & memory

C is certainly affected by light. He loves watching reflected light on surfaces, he can get totally absorbed in them. Some places he cant go in as the light really upsets him, usually the Fluorescent sort.


Am meeting C at hospital today as they are going to make a custom made helmet for him for his headbanging. As you can imagine hospitals are not his favorite place and the lighting doesn't help. Maybe i should ask them if they can design one with mounted shades!

I cant imagine how they are going to get near his head.

57 comments:

Chris H said...

Well good luck today with C's visit to the hospital.. should be 'interesting' seeing how they get his helmet sorted out!

But Why? said...

Sounds like a challenge - good luck today!

Beau McClelland said...

Good luck!

Now if I could get something like that for my own headbanging...

I've got so many dents in my forehead now :(

Elissa - Managing Autism said...

Best of luck - we'll be thinking of you both!!
xx

frog ponds rock... said...

Oh sweety I am thinking of you and C. I hope all goes well in the hospital today for you both... (((Hugs)))

cheers Kim.

Rhonda said...

I'll be thinking about you and C!

BenefitScroungingScum said...

Goodness that sounds like a challenging day for you both. Be thinking of you and hope it goes well. BG x

Jen said...

Good luck to you today! Hospital lights drive even me crazy, much less my kids. I hope that things go well for both of you.

laughingwolf said...

yes, light, especially sunlight, has a great affect on my own moods

is it possible for them to try soft hats of various sizes on c, then use those as measurements? it should be least invasive....

Cait O'Connor said...

I wonder if special kind of 'glasses' could be invented by really clever scientists to prevent the effects of the special sensitivity to light and thus prevent all these conditions.... just a thought.

Lane said...

Good luck today!

Crystal Jigsaw said...

Lots of love to you and C for today's appointment.

Regards the light, I am sensitive to the sun. A low winter sun causes absent seizures in abundance which is a terrible thing if I need to drive. Flickering light is also dangerous to me as is strobe lighting.

Crystal xx

Christy said...

Being a lady extremely sensitive to light, my eye doctor recently gave me a tip for driving at night. He said to turn one of the inside map lights on in my car, the light in the car will keep my pupils in check so the oncoming headlights won't cause such a drastic change. =o)

lime said...

oh i am a migraine sufferer and when i get one i want DARKNESS, truly.

i hope the fitting for a new helmet goes well and that somehow it is not too stressful an event for C.

KC's Blog said...

Good luck today at the hospital.
We have a friend who lived in Alaska and she had to buy a special light for her home during the very dark months in Alaska.
I guess the light was supposed to make it feel/look as if the sun were shining.
K.C. is definitely sensitive to light/sounds.
Keep is posted on the helmet for C.

Mel said...

Ah, well this is why they're the professionals and will get it done. I'm sure they're practiced at it.
I hope!

Safe journey and good luck to you and C.

Preseli Mags said...

Good luck with today's hospital visit.

buffalodickdy said...

Informative and well-written post! I sure hope everything goes well at the hospital for you and your son today....

UN PEU LOUFOQUE said...

Bon Chance Casdock to you all including the staff, Poor C I imaigne it will be an upsetting experieince for him as he have said before he does not liek being touched.

DJ Kirkby said...

Good luck with the hospital visit today, let us know how it went. N3S and I spend a lot of time in sunglasses and I hate flourescent lights! Did you know th enew energy saver lights give off the same light as flourescents? Nasty!

Ian Lidster said...

As a minor sufferer from both migraine and SAD, I am holding a personal protest against those hideous (imposed) fluorescent lightbulbs. They will 'never' be found in my house. So, my advice to others who feel the same way: hoard, hoard and hoard some more conventional bulbs. What are they going to do, send the lightbulb police to our homes?

MMC said...

Is he extremely tacticle-sensitive? Is that the issue with actually getting the helmet near him?

Mrs. C said...

Hmm... blogger wouldn't post my comment before but what I SAID was, that I hope the hospital staff are understanding and kind to C.

Vi said...

Oh wow, good luck with that. I know how you never thought this was a good idea, that you wouldn't be able to get it on his head.

Casdok said...

MMC
Yes C is tactile, light, sound etc sensitive! New faces, different places, people touching him - all over load and induces headbanging. And of course he has only been to hospitals for evasive proceedures.

motherx said...

Good Luck! I really hope it all goes well. It must be very stressful for you.
W loves toys with moving flashing lights but I dont think he can focus well. Also if something flashes on the tv he holds his hand up to try and straighten the picture out!

Jade said...

I suffer from pretty bad light sensitivity myself. I can't go anywhere without my sunglasses or my eyes pour and I get a headache.

Every single one of my spectrum clients has some degree of light sensitivity. You'd think by now I'd carry a extra pair of sunglasses with me during my cases. Every time I take one of "my kids" out side for a walk or bike time they always end up with my sunglasses and I end up squinting with a headache! lol

Hope the hospital visit goes smoothly!

Preposterous Ponderings said...

Good luck getting C fitted for the helmet.

Do share a picture of it once you get it.I am curious to see what it looks like.

I think I am going to have to get a helmet for my youngest who has epilepsy.I'll ask the neurologist at our appointment on Friday.

Tom Foolery (TF) said...

Casdok, Hope all went well for you and C today TFX

Joy said...

Good luck. Doesn't sound like a fun day, that's for sure.

J said...

Sounds like you have a stressful bit of time ahead of you. Knowing hospital staff they'll bring up sedation--for better or for worse. Thanks for the info on light sensitivity.

leslie said...

It must be all over by now, as I read this from western Canada. I sure hope it went well with a minimum of upset for all concerned.

Anonymous said...

"Hell wie der lichte tag" so sagt Osram, oder Hölle ist der lichte tag vielleicht where lucifer dwells.

As for those fire worshipping light bulb manufacturers who have a car named for them, well I dunno.

Angela said...

It is amazing how light can affect our health.
In most of my pictures growing up my eyes are closed I have always been sensitive to light

misha_k said...

Best of luck with C today. I hope everything goes well for him.

I know I can't handle light of any kind when I get a severe migraine. J tends to get real hyper when we're in a store that has the flourescent lighting. That, combined with the sounds and sights and smells sends him into overload.

Fern said...

I hope everything went well for you today, best wishes.

Josie said...

I hope everything went well. I have a friend with epilepsy, and she can't go into a club where there are flashing lights. I am sensitive to light as well, and feel much better when there is natural light, and brighter days.

Ange said...

Hope all went well today.

My and Moose both sneeze when we first walk out in bright sunlight. I am very sensitive to light, it makes me feel queazy and can give me headaches. Night driving is nearly impossible. I ust got new glasses with lenses that darken in UV light and also anti-reflective / glare stuff.

Patti said...

I hope everything went well today with C, and it wasn't too stressful for you.

Joeymom said...

Joey hates the dark. Given the choice, he usually turns on every light he can find. He also loves staring into lights- I can't give him a flashlight, for example, because he'll flick it open and hold it directly onto his eye to look at it. We call it "light hypo-sensitivity" though its not quite right- just gives us a contrast to the usual hypersensitivity that seems far more common.

Mary P Jones (MPJ) said...

Good luck with the hospital trip. I will be thinking of you!

B.T.Bear (esq.) said...

Mummy's depreshun is werse in winter. We hav 'daylight light-bulbs' an they help a bit!

Nose hugs!

:@}

Anne Brooke said...

Light does make such a difference - I always use my Britebox every morning now!

A
xxx

TheBirdman33 said...

I hope it went well at the hospital, I can't wait to hear if there are improvements once he has some headgear.

My eyes are VERY sensitive in the morning, but I doubt there is an actual medical problem its probably just very light blue eyes that dont get enough rest.

motherx said...

Hope hospital visit went ok for you both.

MOTHER OF MANY said...

Good luck with the helmet,we thought for a while that Beauty would need a helmet but she seems to have passed that stage.One of the little boys in her class came in with a new helmet today and he was so pleased with himself,it looked very much like an American football players helmet.It must be so much more difficult for young adults such as C,I hope he gets use to it soon.

Phil Plasma said...

The question isn't how are they going to get the helmet fitted for him, the question is how are you going to get it on him once you have it?

captain corky said...

It seems like a lot of people are suffering from SAD this month. Not me though, I drown my sorrows in drink. ;)

Maddy said...

I don't think any of us to well in hospitals, but it's a lot tougher for some.

Everyone locks onto negative associations without any trouble or explanation.

Best of luck today.
Best wishes

Doc said...

I hope they are able to get the helmet right for him....

the mother of this lot said...

Hope everything goes well. I left you an award - come and collect it. You can tell C it's especially for him!

Niksmom said...

Nik has difficulty with flickering light as we drive or walk outside (um, that would be as opposed to driving inside, I suppose? Duh!). It upsets his balance.

I hope the visit to the hospital turned out okay!

Omega Mum said...

Really hope it all goes well. I have a friend whose aspergers son had to have hearing aids - it was never easy but made a huge difference depending on the consultant who was in charge - the nice ones made it so much better.

Joan said...

I hope your trip to the hospital today was productive and not too stressful. As a migraine sufferer, I empathize with anyone affected by the glare of lights.

Bonnie said...

((Hugs!))

WesterWitch/Headmistress said...

Hope the helmet fitting went ok for both of you.

Being a migraine sufferer I am very light sensitive - have eyes that take in light like an albino apparently - except I am not albino . . . Have to wear sunglasses all summer - avoid bright and flickering lights etc . . .

Mima said...

I know I am coming to your post very late, and that the visit will have already taken place, but I came over on a visit from David's blog and started reading around! I really hope that all went well with the visit. My MS always seems to be worse in the winter, and I did try a light box one winter in case SAD was affecting it, but it sadly didn't make any difference for me. Loved the ape vs. artist post, very amusing!