On the train on my why up to London to meet But Why for the first time, I was thinking what if her blog is a front and she’s some sort of mad axe murderer? (she wasn’t by the way, she was lovely, and we did have a laugh about it!) I was also thinking about DJ Kirkby’s blog that I had read that morning, as she had written before she dies she wants to see her sons grow up to be men.
So if I am about to be hacked to death by mad axe woman, what will happen to C?
This is something all parents think about im sure, but for us with our children so venerable it is a big concern.
C has been abused over the years in one form or another and that is with me here to protect him. C cant talk or sign, so who will advocate for him? My siblings all have their own lives, my friends have their own disabled children.
Who will make sure C wears decent clothes, has the latest DVDs, who will notice when he is ill, or fight for him for what he needs?
And a big one for me, who will make a fuss of him? Who will give him love?
There is a possibility that C could die before me as his head banging is so severe. But I obviously don’t want that to happened or I wouldn’t be doing everything in my power to help him.
So it is a real worry. Its such a big subject yet its something we dont like to think or talk about.