Friday, 19 October 2007

Walking in straight lines.

My cat has reappeared, but she has the hump!
The adrenalin of excitement of seeing C is beginning to wear off and sleep deprivation is creeping in. C is hyper in every sense of the word and doesn’t need much sleep or like sitting down. You sort of get used to it as I know its only for a couple of weeks. And it would be very unfair to sedate him just so I can get some sleep.

We thankfully had a quiet uneventful first day. Which is nice as it takes C a few days to adjust to being home. He’s away 5 or 6 weeks then home for 2 weeks. This is supposed to be more consistent as it means we don’t get such a long summer holiday. No local school could handle C, hence I had to look further a field. I ended up travelling the entire country to find a specialist school that I thought he would benefit from (even then they don’t always get it right) Its obviously not ideal but I do believe C is getting a better quality of life this way.

A few of you asked about transport. C likes straight lines. We have to walk in a straight line, going round corners he finds distressing, and turning round and going back on your self is a definite no no. And I cant stop and look at anything. C prefers to walk behind me, and im not even allowed to turn round and look at him, all result in head banging. But being a mum I have eyes in the back of my head! The same when driving , forget roundabouts, turning round, going backwards, slowing down, don’t stop at traffic lights or roadwork’s! Head banging in the confines of a car is not a good situation to be in. And I don’t agree with restraints. So trains, ‘if ‘they behave are the easiest option! C is still very happy to be home. I give him plenty of space and time out. I try not to put too many demands on him, and try and do things he enjoys, after all it is his holiday and he does need a break from learning to count to 2. (Why do schools have to do that!! )

So today we are escalator surfing and feet watching with our PA! I will expand on that tomorrow!!

44 comments:

Cathy said...

I would be interested to know what school C attends and how you have found it, as I often have to make suggestions of schools other parents could look at. There is an email link on my blog profile, if you would be happy to disclose any of this off blog...and I can tell you where our son is!

Cx

Elissa said...

Escalator surfing is very popular in our house too!

We have quickly discovered that finding the right school is such a challenge - it's certainly not as simple as picking one close by!!

Looking forward to hearing about your feet watching...

UN PEU LOUFOQUE said...

Now wat you need is somewhere like Heathrow that has MILES of straight flat escalator walkways!!!Escalator surfing would terrify me I have always had visions of getting toes stuck!!

Casdok said...

Im actually very near Gatwick and spent many hours there!

captain corky said...

You do an amazing job casdok! One thing that is clear is that C is very much loved.

Nancy said...

I agree with Corky, you are amazing and so in tune with C and his needs.

I look forward to your posts about these 2 weeks you get to spend together.

Casdok said...

Its taken years of practice!

Suzy said...

I'm so glad C is home for vacation, and you have this time together. In so many respects he's like anyone else with his likes and dislikes. He just communicates it differently.

I really wanted to tell you how much I love that photo of him with his baseball hat. Does he always wear it?
LOVE the hat...

Love.
Suzy

Casdok said...

Suzy. You have git the nail on the head!
And i love that photo too! My mother hates it, i will tell you why in a blog sometime!!
Yes he does wear it a lot!!

Attila The Mom said...

So glad to hear you guys got back home in one piece! Have a wonderful visit!

Beth said...

You're amazing. Your account of your life with your son is so matter-of-fact (and educational for someone like myself).
I know, the catalyst is mother-love, as are the rewards C. gives back to you. Still, I admire you so much.
Hope you get some sleep!

Christy said...

Sleep deprivation does make things difficult. You are such a patient woman, I admire you very much. I am happy to know things are going fairly well so far.

BBC said...

I got it !!!

C needs a...... a..... a..... RACE CAR !!!

Pedal to the metal and hauling ass on a two and a half mile oval keeps ya focused.

No? Oh well, it was just a thought. :-)

Amanda said...

i like the picture too...

can relate with the driving woes...
my one son hates long traffic lights,
or waiting in a line of cars...
starts hitting (anyone in near him- if no one is near him he smacks himself in the head)
doubling back because you forgot something ruins his whole day...

Top cat said...

I admire your strength as I do all parents and caretakers of special needs children.

Hi kitty, welcome home. Have a great weekend, thanks for stopping by and sharing a laugh with us.:)
tc

buffalodickdy said...

Well, it sounds like one of you is going to have a vacation! You try and have a little fun too...

Jodi said...

Straight lines!
Don't we just lead interesting lives?
What is the mo? You left a comment on my blog.

Paul F. said...

Interesting. It's all about straight lines and going straight. It's a strange world C lives in. Like a jigsaw puzzle, all the pieces must be put in place just the right way or utter chaos will ensue.

her indoors said...

it must be difficult when driving having to avoid round abouts, we have trams they would be good for C, glad you have the mums eyes in the back of the head, does he ever stray?

Casdok said...

Not since he has been older, used to when small!!! Lost him a few times.

Holly said...

Oh my! You do that trip every 6 weeks! I was imagining a longer break. I understand the why, but that was unexpected.

Vi vi vi vooom!!!!!!!! said...

You are teaching me so much about autism Cas. Thank you for opening my eyes.

PI said...

I do hope you manage to get some rest and that C and you enjoy your time together. You are a lovely Mum.

Tera said...

Yeah, the don't make too many demands thing is one that was again reiterated in our battle last night. I'm so glad he's happily at home. Take good care of yourself during this holiday as well. We have also searched long and hard for the right school, and finally found a great compromise where Kaeden learns in an autism classroom with 5 other kids...but they still aren't 100% ideal, as the bus is his big issue and he's on it 2 hours every day...makes for lots of problems. But, life with autism is never ideal...you do what you can and what you think is best and it works when the stresses of autism aren't overabundant. Enjoy the escalators today, and have a terrific weekend with your son!

Little Wing said...

Not hard to see why God chose YOU to be C's mama!
Get him one of those t-shirts that say "I have Autism, what's YOUR problem?"

BBC said...

There is a lady, in her fifty's is my guess, that works in a local hardware store. I had never given it any thought but she must have mild autism. She stims a lot. I'm trying to recall if she has ever spoken.

She doesn't do much, bags the customers items at the check out, seems a bit afraid of folks but hangs in there. It's nice that the store gives her employment, I like to think that it helps her feel useful and better about herself.

I hired a lot of people over the years as a business man and service manager. I think they where all mentally disabled. LOL

dawn said...

As I wrote yesterday you are remarkable. It takes alot of patience and love to deal with something like this and I wish you all the best.

Casdok said...

Thank you, and thank you everyone for all the praise, but i feel i am just doing what any good mum tries to do! And that is my best. I dont always get it right!! But i do try.

Billy Boy said...

Good to hear kitty returns. You will just have to add a picture of her onto your blog as she's being left out......

Helen said...

Wishing you a lot of strenght and love and fun and everything else you wish for now with your son!

How do you ever get home, when you can't walk around corners and not return on the same way? :-)
(sorry, just kidding)

Casdok said...

Have noted your comment BB!! And added a pic!

Ivy said...

Well what is he really taught at this school? How much longer can he stay there and where will he be living after he finishes school? I imagine this to be very difficult. the only autistic person I ever came accross was a boy confined to a wheelchair able to communicate via a computer. So a totally different situation from yours and his mother, like you, an admirably open and unsentimental person.

Casdok said...

I dont actually think he is taught anything at school! He only has 6 months left then onto an adult placement.

Angela said...

Well if you go strait a long time you will eventually end up where you started

abstractjenn said...

Glad you are enjoying your time with C. I know you think you are just doing what every mom would do but you really are doing so much more. I worked in that field for a long time and saw a lot of different types of parents. The lucky kids/adults had parents like you.

Patti said...

you are an extremely patient woman - sounds like the visit is going well.


I gasped when I saw your cat. She looks just like our departed Humphrey, whose nickname was Hump. A truly amazing resemblance.

Bonnie Arnwine said...

Good for you not resorting to sedatives. You are an awesome woman, enjoy the escalators.

CAMILLA said...

You are such a wonderful Mum Casdok,best wishes to 'C', and thank you for sharing your life with us.

Love Camilla.xx

dykewife said...

there are rear-view mirrors that clip onto glasses for cyclists that you might find handy for keeping track of c. that way you don't have to have eyes at the back of your head.

Maddy said...

We to have serious issues when it comes to travel, especially by car - the little one has a GPS system and a superb compass installed in his brain. There's nothing like a U-turn to guarantee that he'll go ballistic.
Best wishes

Marla Fauchier Baltes said...

I am so glad that you have a good support system in place. I can imagine if you had to care for C on your own daily you would eventually need to sleep. Was there a time when he was younger that he did not go away to school? How did you handle him not sleeping? I imagine caring for him as a todler was difficult if he struggled with sleep. When our daughter never slept it became very difficult to care for her as well as I wanted to. We had to begin using medications to help her sleep. If we don't all of us don't function too well and her seizures increase a lot. When he is at school does he sleep well? Does staff help him through the night? I am very interested in sleep struggles. This has been a huge area of challnges for our daughter. There have been times when she stayed up for three days straight. Even still she can get up and be full of energy for hours at a time in the middle of the night.

Casdok said...

At school they have waking staff.
Yes before boarding school, i used to send him to respite, but it broke down as they couldnt cope, and yes i did used to sedate him. Didnt like doing it and was a last resort, but like you say, we do need it. Also use a lot of alternative remedies, like Lavender oil, and camomile tea with lots of strong juice in it!

Billy Boy said...

I guess thats one of the reasons why kitty had the hump.! now she has her own photo on the net, she's a star.....like yourself.

Odat said...

I'm glad the cat came back! (I have no idea what the hump is tho. lol)
I hope you're enjoying your time with c...you're a real inspiration.....bless you.
Peace