I mentioned my PA (personal assistant) yesterday. I haven’t always had a PA. Until C turned 18 ‘he’ had a PA (who I employed on his behalf) for about 5 years. But when he turned 18 I was told he couldn't have a PA anymore even though it was working well because….he couldn’t consent to it!!! I appealed, it went to an ethics committee and we were turned down.
Here in the UK when you become 18 you are an adult in your own right, and apparently I don’t have a say anymore! So we then had to go through the whole process of me applying for a PA in my own right as a carer. Obviously I got it!!
This consent issue reminded me of the recent case of Alison Thorpe. Benefit Scrounging Scum, and others have blogged about this so I wont.
As mentioned before I don’t feel I have the right to sedate C as it would only be of benefit to me and not him.
But do i have the right to put pictures of his bedroom on the Internet?
Or putting pictures of C on here, without his consent. Or even blogging about him. If he were any other 19 year old I could ask them and abide by his wishes, But I cant with C. So should I adhere to his human right of privacy now he is an adult? Or do I have a right as his mum to use my own judgemeant?
C is on show all the time when we are out, he is looked upon as some sort of freak. Hence I wanted to do a blog about us to show people he is not. And by educating people it would be of benefit to him. Is this my right? Like Alison Thorpe, I am just doing what I think is morally (but maybe not ethically) right.
But is it?