Monday, 1 October 2007

MPs will say anything for a vote.



At heart I am a peaceful person, except like any parent when I have to protect my child, or fight for his basic needs.


I have fought many battles for my son, and won. It is very wearing, but what choice does a parent have? Any parent.


For my biggest battle I used my local MP, I went to see him, explained my situation and asked for his support. He said ‘I don’t see the point of spending money on your son as he is not going to amount to anything’ I sooo nearly hit him. He then went onto say ‘But my position is to support local people so I will write you a letter’ And he did.
He has since resigned.

That is their job, and it is away of educating the government to our needs. So don’t be afraid to use them. Local councillors’ to. Even if they do say stupid things (i am being polite using the word stupid!)
And people wonder why us parents end up with attitude!

43 comments:

Elissa said...

I agree, we do anything for our kids, no matter what the battle!

Crystal Jigsaw said...

As a member of the National Autistic Society, I frequently join in their debates and campaigns. We did one which covered better education for autistic children, called Make School Make Sense. Worth checking it out. Website address is www.nas.org.uk

Excellent website. I nominated Amy's support worker for an award and she was in all our local papers! We also had to write to our local MP's. They did take action, not enough of course, but it did help.

Crystal xx

Vi vi vi vooom!!!!!!!! said...

The only way we'll ever get anywhere in our lives, is to stand up for ourselves and our children. Well done!

BenefitScroungingScum said...

Thank goodness he's resigned! BG x

dgibbs said...

Sometimes I just feel like telling people "If I wanted your opinion I'd smack it out of you!"

Glad you got the letter though.

Dyspraxic Fundamentalist said...

He actually said that? That is shocking.

What an unusually honest, if unsensitive politician.

Suffolkmum said...

Good for you for continuing to fight. Can't believe that man actually said that though.

Ian said...

I can help you.

Helen said...

I guess I would have hit him
:-o ... but you have probably been much wiser, since you needed his help...

Would you have considered yourself as a rather shy person before C was born? Just curious, because I have seen quiet withdrawn mothers turn in such great fighters for her kids - I love that sign of special bond!

Casdok said...

I certainly was a different person!!
And it is much easier to fight for your child than yourself.

Marla Fauchier Baltes said...

I certainly became a strong advocate for my daughter. I used to be afraid to stand up to anyone in regards to her care and education. It is amazing what you learn and what you realize you are strong enough to do.

Jade said...

I'm working with a child right now who's parents were told "He will never talk, so just save your money and enjoy the time you have with him." Well... they weren't happy with that answer, so they started with A.B.A. and the company I work for. Now, 4 years later and about 300 words and you can't get the little guy to be quiet.

The ignorance of MDs.... YAY for for you for never giving up!

Inthemud said...

Of course we fight for our children, but in your case and others like C, WHY oh WHY should you have to fight for what they should get by right???.

WesterWitch/Headmistress said...

Berludy hell that is disgraceful . . . you should have poked him in the eye . . .

Casdok said...

Yes why oh why do we have to fight? We have enough to be getting on with.
But its not about the child, its about money.

Holly said...

"except like any parent when I have to protect my child"

Unfortunately, this just isn't true. I know, this isn't the point of your post. But my own parents walked away. It is what draws me, partially, to your blog. The power of a mother's love, no matter what.

I feel it for my own son, but hope to never see it so tested.

Beth said...

Pity the person who gets between a mother and her children's needs - we can be ferocious. I've undergone (many times) a complete personality change when defending my kids - to the surprise and horror of those at the receiving end.

PI said...

Thank God for mothers.

Dr. Deb said...

WHAT????????

What an ignorant person.

I refrained from letting more expletives fly.

Susan Kelly Skitt said...

Yes, I am learning how difficult it can be to get your child the help he needs... our youngest is six and for three years we have been not only trying to figure out what is going on with him, but get him the help he needs. At first he was diagnosed with Mixed Receptive Expressive Language Disorder and now an Auditory Processing Disorder. It is not easy as a parent to know what to do sometimes. I keep praying and try to love my son the best I can. It's not something I like to talk about with many people, like you said, everyone offers their 2 cents, but I'm learning to filter it, do what I think is right, and keep trusting God for the results.

You're in my thoughts today.

P.S. I'm here via Helen's blog:)

Little Wing said...

Oh what a pitiful doctor.
What an ignorant man.
I am so sorry you have to go thru such bullshit just to get what your son deserves.

Shrink Wrapped Scream said...

One of my four children lives with autism. Recently I found my eldest child may have a brain tumour. BBC came in to my site to mock this. I am astounded you visit his site.

mommy~dearest said...

Way to go!

I have (many of times) gone to bat for my son, and came off as the "supreme bitch". Hey, what can I say? It's my son, and the momma-bear comes out.

It's just pathetic that all of the bantering is usually a huge waste of time before anything gets done.

Ms.L said...

Awww man! I think you showed great self-control:)

Casdok said...

Shrink Wrapped Scream, I am so sorry to hear that, i hope there is something they can do.

DJ Kirkby said...

I am a member of the NAS and joined in the 'make schools make sense' campagin which amounted to nagging our local MP's, great fun really and nice to see them sweat!

Shrink Wrapped Scream said...

I have had wonderful news today - apparently it's not life threatening. It's been the worst weekend of my life, but no, he's not going to die. Sheesh, bloody consultants, eh? Anyhows, now we simply need to know what this "abnormality" on his MRI is, and how to cure the headaches.. small potatoes, all things considered. All us mothers assume the worst, don't we? (Wink) Thanks. I'm sorry for coming in so heavy, but BBC kicked me at my lowest - I saw you on his site, and couldn't understand why you were in there.

Casdok said...

Thank god for that! And yes we do, assume the worst, my sons self injours behavior is life threatening, so i know a bit what it feels like.
And you dont have to apologise!

Shari said...

Thanks for stopping by my site. Isn't it weird that when it comes to someone we love, we fight and become advoates.

I hope your son gets the help he needs. Some famous people were autistic (Issac Newton and Einstein come to mind). I have a friend who's son has Asperger's.

I have a mother on my blogroll( http://michelleoneilwrites.blogspot.com/ ) who blogs about what helps her kids and random things they do that show how special they are. Many people who comment on her blog have kids who are autistic, too.

oreneta said...

Thanks for coming by my site...I love your sayings. Every last one of them. Everyone. And that MP...a complete dork. Blech.

Chris H said...

I would have hit the arsehole, seriously!

MOTHER OF MANY said...

My father was involved in local politics all the time I was growing and so I am totaly aware of what they are like and I trust none of them.

Pavel said...

Hi! Just swinging by from Books ETC..., and I'm glad I did. My 10 year old is autistic and I can sure relate with you, the battles fought, most won, some lost - getting the things he needs. I can certainly understand your aggavation with some of these folks. I'm fairly sure I haven't encountered a person who said my child won't amount to anything, because I would remember both him and the desire to beat him senseless. I'm sorry you had to encounter such an ignorant man.

April said...

I agree about having no other choice but to fight for our children. Many people say "I don't know how you do it" etc, but my answer is always, "what other choice do I have?" He is my child and I have to fight for him, period. If I had a choice, I would definitely choose an easier job than this!

BBC said...

I think SWC misunderstood what I said, but what ever. She just doesn't like me.

I don't know what it is like over there, I don't really know what it is like here, but I see a lot of autistic people here, and they seem to be getting good care and support.

Suzy said...

I've always wondered what these doctors would do if it were one of their children?
Would they be as dismissive as they are to their patients?
I think not.

Love
Suzy

Susan Helene Gottfried said...

My kids are both gifted -- and I have spent an inordinate amount of time fighting for things for them, too.

I can begin to imagine how hard it is for you, and what sort of hill you face every time you need something for your son.

Keep on fighting the good fight!

jen said...

it's amazing the lengths we'll go to, the fearless lengths.

good for you.

Angela said...

People really can be dumb. I am glad he is gone. It is crazy what people especially moms have to go through for their children.
Great job!

Get Off My Lawn! said...

Hiya. Just returning your visit. This is a nice blog and I, as an educator, am going to keep checking in to see how things are being handled on your side of the pond concerning education and cognitive exceptionalities. I'm Canadian so when you said MP, I thought you meant Member of Parliament! Medical Practitioner? OK, I get it. I still can't believe he said that. What a twit! Next time, punch him, sue him, then get your funding.

Attila The Mom said...

Great job!!! I guess politicians are just about the same everywhere, aren't they... :-(

Jenni said...

How frustrating to hear someone say that about anyone, let alone your own child! What an idiot. Perhaps your son will not win the Nobel Prize or become Prime Minister, but he is a human being; he has a soul and he does have worth. Who knows how many lives he will touch in his own way?

farmwifetwo said...

First I read - London??, then MP's?? and thought.. where is she... No not local :)

We're headed for a provincial (next week) and maybe federal election soon and it's amazing the crap politicians will say. Luckily here they don't usually say something rude about education. Or atleast not in public.

S.