For about 12 years now C and I have surfed the escalators in our local shopping centre. Its part of our routine, its repetitive and they go in straight lines!! The security guards in the centre know us well and have watched C grow up. On many an occasion they have come to our aide when the public have, how shall I say politely - not been very nice. They have also let us in the centre on days when it has been shut and turned the escalators on just for us. How wonderful is that!!
C loves watching feet (less threatening than faces!) So he will stand or rather stim (rocking and jumping) for hours just watching. He is so happy doing this. Luckily in the shopping centre there is a cafe, right by the place he likes to stim, so my PA and I get our caffeine fix whilst we keep an eye on C making sure we are on the ball incase of any trouble.
My PA is wonderful. She has the same attitude to disability as I do and knows me and C well. She has been of great support over the years, she is my rock, my shoulder to cry on, and we have a laugh as well. I employed my own PA under the Direct Payment Scheme, this allows you to find your own support to fit what ever needs you have. Before having this social services were sending me nurses, a different one every time. This did not work and I didn’t want to use the local respite care home, I wanted to be with C. So employing my own PA works very well. What do other people do? Am very interested also to hear what happens in other countries.