When C was first diagnosed, our GP struck us off his list. When I explained to another GP that’s Cs head banging could kill him, he simply said ‘wouldn’t he better off dead’
Taking C to hospital is a last resort, we have had to go several times. And trying to explain someone like C to them is difficult. They think they know autism, and they think I am being over protective. Its only when they meet him and see what he is capable of do they realise. Yes his self injurious behaviour is serious.
One hospital has changed its teaching programme because of C. Pity he had to go through an horrendous ordeal first. Even though I tried to prepare them. Dont be afraid to make complaints. It does help them!!
C and I have also been involved in quite a few PhDs. So hopefully professionals in the future will have a bit more of an understanding.
Someone made a comment on C having a vocation. I think at the moment it is Teacher!!
And I think he has earned an honorary degree!!